News
Jun 07th 2022 - Ava’s transplant story
Ava grew up with Dom who was born with a serious heart condition which eventually led to him having a heart transplant. Eight-year old Ava was inspired to write this fantastic story during her school holidays. Transplant Hello my name is Ava and I’m writing this book for children who have heart conditions. Characters Cyan […]
Jun 07th 2022 - CHF – children’s story competition rules
The rules are simple. The story must be written by a child 14 years or younger. The story must be about or include a child with a heart condition. Deadline for entries is extended to 26th August 2022. Winners will receive a prize goodie bag from CHF. Please email entries to info@chfed.org.uk with Children’s story […]
May 18th 2022 - New study on the benefits of exercise for children with single-ventricle heart conditions
A new study in Australia and New Zealand is investigating the benefits of exercise for children with single-ventricle heart conditions. The research is being conducted by cardiologist Associate Professor Rachael Cordina. “Emerging research is now suggesting that exercising is even more important than in the general population for people with the most complex types of […]
Apr 26th 2022 - Tell your MP to #SENDABetterMessage
Some but not all children with heart conditions are disabled, but please join CHF in supporting the Disabled Children’s Partnership to help create a fairer support system for all disabled children and their families. The Disabled Children’s Partnership (DCP) is calling on the government to use its SEND reform programme to create a more just, […]
Mar 31st 2022 - JCVI Update for children and COVID-19 vaccines
As the national booking service for COVID-19 vaccines opens for Spring booster appointments, the NHS has made it easier for people with a weakened immune system to get the vaccinations they need. Children aged 5 to 11 at high risk The Joint Committee on Vaccination and Immunisation (JCVI) advises recommends that 5 to 11-year-olds who […]
Feb 21st 2022 - Coffee & Questions – Medicines for heart children
Our next Coffee & Questions will take place on Wednesday 2nd March 2022. Dr Abbas Khushnood, consultant in paediatric & congenital cardiology, will be answering your questions about medicines for children with heart conditions. Dr Abbas Khushnood was appointed as Consultant Paediatric Cardiologist at the Freeman Hospital, Newcastle in 2018. He has been the Network […]
Jan 19th 2022 - CHF Research Projects – tell us what you think about long term medicines for children
Through our work we have learned that there can be practical and emotional issues, as well as some positive experiences, that parents/carers encounter when giving long term medicines to children. We have therefore decided to support the running of a survey aimed at parents/carers of children on long term medicines designed to help us understand your […]
Dec 15th 2021 - BCCA News Update 14th December 2021 – Covid–19 Vaccination for children and young people
Covid–19 Vaccination for children and young people On 26 November 2021 WHO designated the COVID variant B.1.1.529 a “variant of concern”, named Omicron (WHO update on omicron 28 Nov 2021). In response to the emergence of this variant the JCVI has expedited and reviewed its advice for the UK vaccine response (JCVI advice for omicron 29 […]
Nov 03rd 2021 - Knitters needed
The Molly’s Dollies look great in their colourful jumpers but there is a serious reason behind the reason we provide them. The V neck jumpers show the majority of dolls’ scars so children can see the scar and show it to their family and friends […]
Oct 27th 2021 - Updated BCCA Statement on COVID Vaccinations for Children and Young People
COVID19 Vaccination for children and young people The Pfizer/BioNTech vaccine was approved for use in children aged 12-15 years by the Medicines and Healthcare products Regulatory Agency (MHRA) on June 4th 2021. The Joint Committee for Vaccination and Immunisation (JCVI) recommended two doses of COVID-19 vaccine (Pfizer/BioNTech) for children between 12 and 18 years and either […]
