Research Programmes
Jun 23rd 2021 - Heart siblings impact study
Lizzie Bichard a cardiac nurse and one of the speakers at a recent CHF Coffee and Questions evening is conducting a study on the impact having a child with a heart condition can have on their siblings. This is part of her Phd, Lizzie interviewed some heart siblings last year, this is a continuation of […]
Jan 21st 2021 - The impact of the first wave of COVID-19 on those with lifelong conditions: a case study of congenital heart disease
CHF has been involved, alongside other heart-charities in the CHAMPION study, the first part of which looked at the impact of COVID-19 on adults and children with heart conditions. CHF ran an online forum in a closed Facebook group where parents could answer a series of questions and also debate with each other. The results […]
Aug 13rd 2020 - Can you help us improve the quality of services for congenital heart disease?
The Children’s Heart Federation are involved in a new study called CHAMPION to try to improve how the quality of services for congenital heart disease (CHD) is measured and reported in England. We want to hear your views on what makes services good quality, which includes understanding how COVID-19 has affected your experience of health […]
Aug 11st 2020 - Activity toolkits – feedback survey
Heart research UK have produced four toolkits about the importance of safe exercise for children and young people with heart conditions. They are eager to share these resources but would also like feedback about the resources, from parents, teachers and young people, in order to make improvements in future and to ensure needs are met. […]
Apr 23rd 2020 - What are your views on using patients’ health data to try to improve services?
The Children’s Heart Federation is involved in a new research project called CHAMPION to try to improve how the quality of services for congenital heart disease (CHD) is measured and reported in England. Many research projects collect new data and, as part of that, patients are explicitly asked to consent to that new data being […]
Apr 15th 2020 - What are your views on using patients’ health data to try to improve services?
The Children’s Heart is involved in a new research project called CHAMPION to try to improve how the quality of services for congenital heart disease (CHD) is measured and reported in England. Many research projects collect new data and, as part of that, patients are explicitly asked to consent to that new data being used […]
Apr 14th 2020 - Take part in the SHARE study – what is your experience of COVID-19 coronavirus?
The University of Southampton and the University of York are researching how children and young people with congenital heart disease and their parents are finding life during the COVID-19 coronavirus outbreak. The SHARE study: how are you coping. Parent survey Child Survey For more information, contact: SHARE.study@soton.ac.uk
Mar 12nd 2020 - Research study – looking for parents of children with CHD and or Down syndrome
Dr Marcia Van Riper, Professor at the University of North Carolina is conducting a study to examine how social determinants of health (e.g. economic stability, education, health and health care, and where you live) influence child and caregiver health-related quality of life and family adaptation in three groups of families: 1) families of children with […]
Oct 25th 2018 - Selection, definition and evaluation of important early morbidities associated with paediatric cardiac surgery
CHF has been involved with this research project being carried out at Great Ormond Street Hospital. Read more about it here.
Aug 16th 2017 - CHF supports research into an intervention to reduce distress after a stay in intensive care
This is a survey looking for feedback from parents with children who have been in paediatric intensive care (PIC). The study at King’s College London is exploring a new intervention that might reduce distress following a stay in paediatric intensive care. We would welcome any parents of children who have been in paediatric intensive care […]
