Research Programmes

The Children’s Heart Federation supports several research studies to improve the understanding, diagnosis and treatment of congenital or aquired heart disease in children.

Jun 23rd 2021 - Heart siblings impact study

Lizzie Bichard a cardiac nurse and one of the speakers at a recent CHF Coffee and Questions evening is conducting a study on the impact having a child with a heart condition can have on their siblings. This is part of her Phd, Lizzie interviewed some heart siblings last year, this is a continuation of […]

Jan 21st 2021 - The impact of the first wave of COVID-19 on those with lifelong conditions: a case study of congenital heart disease

CHF has been involved, alongside other heart-charities in the CHAMPION study, the first part of which looked at the impact of COVID-19 on adults and children with heart conditions. CHF ran an online forum in a closed Facebook group where parents could answer a series of questions and also debate with each other. The results […]

Aug 13rd 2020 - Can you help us improve the quality of services for congenital heart disease?

The Children’s Heart Federation are involved in a new study called CHAMPION to try to improve how the quality of services for congenital heart disease (CHD) is measured and reported in England. We want to hear your views on what makes services good quality, which includes understanding how COVID-19 has affected your experience of health […]

Apr 15th 2020 - What are your views on using patients’ health data to try to improve services?

The Children’s Heart is involved in a new research project called CHAMPION to try to improve how the quality of services for congenital heart disease (CHD) is measured and reported in England. Many research projects collect new data and, as part of that, patients are explicitly asked to consent to that new data being used […]

Apr 14th 2020 - Take part in the SHARE study – what is your experience of COVID-19 coronavirus?

The University of Southampton and the University of York are researching how children and young people with congenital heart disease and their parents are finding life during the COVID-19 coronavirus outbreak. The SHARE study: how are you coping. Parent survey Child Survey For more information, contact:

Apr 23rd 2015 - The LENA Study

LENA stands for Labeling of Enalapril from Neonates up to Adolescents. This study marks a first step in developing medicines in the form of mini-tablets for children, which will ultimately help tailor drug treatment to the specific needs of young patients. CHF have joined a five-year study funded by the EU Commission to develop a […]