Campaigns

May 17th 2012 - Think HEART

About the campaign The Children’s Heart Federation is launching a new national information campaign directed towards parents and medical professionals. The Think HEART campaign aims to empower and inform parents, as well as better educate medical professionals about the key early signs of a possible heart problem in children. Think HEART provides parents with five easy […]

Aug 16th 2012 - Pulse oximetry Campaign

The UK’s National Screening Committee has been considering routine pulse oximetry screening for critical heart defects in newborn babies for a number of years. A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A […]

Oct 17th 2012 - INR self-monitoring Campaign

The campaign for the provision of INR machines continues, if you would like to be involved or support the campaign email info@chfed.org.uk. Background Warfarin is an anticoagulant (blood thinner).  It is used to stop the blood from clotting too easily. It also prevents harmful clots from forming and getting bigger in the blood. If blood […]

May 03rd 2018 - Safe in schools campaign

CHF as a member of the Health Conditions in Schools Alliance is campaigning to ensure that all schools have a medical conditions policy and that it is posted on the school’s website for easy access. Support this campaign by writing to your MP. Download a template letter here. Despite the alliance having campaigned successfully in […]

Apr 26th 2022 - Tell your MP to #SENDABetterMessage

Some but not all children with heart conditions are disabled, but please join CHF in supporting the Disabled Children’s Partnership to help create a fairer support system for all disabled children and their families. The Disabled Children’s Partnership (DCP) is calling on the government to use its SEND reform programme to create a more just, […]

Jan 19th 2022 - CHF Research Projects – tell us what you think about long term medicines for children

Through our work we have learned that there can be practical and emotional issues, as well as some positive experiences, that parents/carers encounter when giving long term medicines to children. We have therefore decided to support the running of a survey aimed at parents/carers of children on long term medicines designed to help us understand your […]