This page feeds the latest news from all parts of our website.

Jan 19th 2022 - CHF Research Projects – tell us what you think about long term medicines for children

Through our work we have learned that there can be practical and emotional issues, as well as some positive experiences, that parents/carers encounter when giving long term medicines to children. We have therefore decided to support the running of a survey aimed at parents/carers of children on long term medicines designed to help us understand your […]

Dec 15th 2021 - BCCA News Update 14th December 2021 – Covid–19 Vaccination for children and young people

Covid–19 Vaccination for children and young people    On 26 November 2021 WHO designated the COVID variant B.1.1.529 a “variant of concern”, named Omicron (WHO update on omicron 28 Nov 2021). In response to the emergence of this variant the JCVI has expedited and reviewed its advice for the UK vaccine response (JCVI advice for omicron 29 […]

Nov 03rd 2021 - Knitters needed

                    The Molly’s Dollies look great in their colourful jumpers but there is a serious reason behind the reason we provide them. The V neck jumpers show the majority of dolls’ scars so children can see the scar and show it to their family and friends […]

Oct 27th 2021 - Updated BCCA Statement on COVID Vaccinations for Children and Young People

COVID19  Vaccination for children and young people The Pfizer/BioNTech vaccine was approved for use in children aged 12-15 years by the Medicines and Healthcare products Regulatory Agency (MHRA) on June 4th 2021. The Joint Committee for Vaccination and Immunisation (JCVI) recommended two doses of COVID-19 vaccine (Pfizer/BioNTech) for children between 12 and 18 years and either […]

Oct 13rd 2021 - Eleven things to know about COVID vaccines and kids hearts

In this American health blog a paediatric cardiologist from the USA answers many of the questions parents have been asking about vaccines, COVID and children with heart conditions. Please give your feedback.

Oct 05th 2021 - SHARE Study – Impact of COVID19 on the lives of children with heart conditions

How has COVID19 impacted the lives of children with heart conditions and their families? The SHARE study is looking at the impact COVID19 has had on participants lives regarding physical (exercise, eating, sleeping) and emotional (anxiety and mood) wellbeing as well as distress experienced. The survey includes two open ended questions on reflections on positive […]

Sep 22nd 2021 - Vaccinating children aged 12 to 15 

All children aged 12 to 15 will be offered a 1st dose of a COVID-19 vaccine  and parents and guardians will get a letter with information about when the vaccine will be offered. Most children will be given their vaccine at school. The 12-15 year olds with heart conditions who should be offered two doses of the Pfizer […]

Jun 23rd 2021 - Heart siblings impact study

Lizzie Bichard a cardiac nurse and one of the speakers at a recent CHF Coffee and Questions evening is conducting a study on the impact having a child with a heart condition can have on their siblings. This is part of her Phd, Lizzie interviewed some heart siblings last year, this is a continuation of […]

Apr 14th 2021 - Join in

CHF SUPPORTERS INVITED TO CELEBRATE CAPTAIN SIR TOM’S ACHIEVEMENTS IN SPECIAL FUNDRAISING EVENT New fundraising initiative over Captain Tom’s birthday weekend of Friday 30 April to Bank Holiday Monday 3 May to celebrate his life and amazing achievements Captain Tom 100 invites people all over the world to take on a challenge based around the number […]

Feb 22nd 2021 - World-first paediatric heart transplant technique boosts number of life-saving operations for children in the UK

Using a technique that ‘reanimates’ the heart outside of the body, Great Ormond Street Hospital, Royal Papworth Hospital and NHS Blood & Transplant expand the donor pool and perform six paediatric heart transplants in 2020 Great Ormond Street Hospital (GOSH) and Royal Papworth Hospital (RPH) have collaborated to introduce a world-first paediatric heart transplant technique […]

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