News
Mar 19th 2025 - 100 Miles in May Challenge 2025
Join us for 100 miles in May, an outdoor adventure whilst raising vital funds to support heart children and their families. Each one of your steps could be life changing! Grab your Fitbits and get your friends and family together for an outdoor adventure whilst raising vital funds to support heart children and their families […]
Mar 14th 2025 - Statement on the abolition of NHS England
We welcome any initiative that puts patients first and increases the resourcing of the NHS. We await the ‘3 big shifts’ in services suggested – analogue to digital, sickness to prevention and hospital to community – and the potential for improvements to the care pathways, earlier detection and long term outcomes for children with heart […]
Apr 08th 2025 - Our Vice-Chair hits impressive parkrun milestone
Our very own Vice-Chair Paul had a special weekend as he clocked up a parkrun milestone with his 50th volunteering credit with, he said: “It was very special, as someone who was told not to do sport as a kid due to my heart condition, being able to participate through both doing the events and […]
Feb 18th 2025 - 2025 Family Activity Day
Join the Children’s Heart Federation for an outdoor activity day at Ghyll Head, Windermere When: Monday 21st April 2025 Where: Ghyll Head, Bowness-on-Windermere, Windermere LA23 3LN Activities: Kayaking, Zip wires, Caving / Dark tunnels exploration, High Ropes, Climbing and much more! Food & Refreshments: Provided Booking: Booking is essential and Places are limited so book […]
Jan 13rd 2025 - Team CHF for The Big Half 2025
Join thousands of other participants in this spectacular half marathon event through the heart of London. Great for novices and experienced participants alike, the course winds its way through the capital from Tower Bridge to the iconic Cutty Sark. Come for the finisher’s medal or to celebrate London’s diversity. […]
Jan 31st 2025 - Heart Month 2025
Each year, National Heart Health Month is observed in February. During this time, awareness of congenital and acquired heart conditions in children are bought to the fore. This year we are exploring the fascinating ways mental health and heart health are connected, and how small shifts in mindset, lifestyle, and self-care can strengthen both. […]
Feb 03rd 2025 - Turning Adversity into Purpose
Well Financial and CHF team up When Chris Harland, a director at Well Financial, experienced a heart attack last year, it was the last thing he expected. Chris was 48, in good health, active and ran a marathon 18 months before! Not the kind of person you’d never imagine facing such a life-threatening event. Yet, […]
Jan 27th 2025 - Parents to receive neonatal care leave and pay
New Right to Neonatal Care Leave & Pay Thousands of working families with babies in neonatal care will be entitled to additional time off with Neonatal Care Leave. Currently, many working families across the UK are having to return to work while their babies are sick in hospital, and these measures aim to address some […]
Dec 30th 2024 - ‘Hoping for a Christmas miracle’: Children waiting months for life-saving procedures as all NHS beds full
Featured in LBC latest article, the CHF chief executive spoke in relation to critically ill children waiting up to eight weeks for life-saving procedures because there’s no space in the NHS. The chief executive of the Children’s Heart Federation, Rajwant Kaur Singh, told LBC situations like Fatima’s are “devastating”. She said she didn’t believe […]
Jan 15th 2025 - Alexander’s Story
Being told our son had a heart defect and required surgery was a huge shock to us. There was nothing detected on the many ultrasounds scans I had throughout my pregnancy, and having no family history of heart issues, it never crossed our minds there could be a problem. Alexander was born at 37 weeks […]
