News

Feb 01st 2024 - Heart Month 2024

Each year, National Heart Month is observed in February. Read today’s story here   Share your story During this time, we are sharing ‘Your Stories’ every day throughout heart month. Stories really matter; not only do they make a real difference to other people in a similar situation, they offer inspiration and comfort. If you […]

Jan 15th 2024 - Fundraising Events

Take part in an event for CHF Talk to us about taking on a challenge to help us achieve our fundraising goals and support our vision of all children with heart conditions having their medical and social needs met so they can live the fullest life possible. Wear red for CHFED UK    2nd February  […]

Jan 15th 2024 - Steering Groups

Share your experience to shape the future for children with heart conditions   We want to hear from: • Young people with heart conditions (you should be ages 10-25 and at any stage of your heart journey). • Professionals in the cardiac sectors (you could be a nurse, radiographer, outreach professional, care worker, play specialist, […]

Nov 21st 2023 - CHF Walking home for Christmas challenge

Every child should have the chance to be with their families for Christmas. Let’s walk in a winter wonderland this festival Season and join CHF in our ‘Walking Home For Christmas’ challenge, supporting those affected by heart conditions this Christmas. Join walkers nationwide taking big steps to raise money to help children with heart conditions […]

Nov 06th 2023 - CHF gives recognition to rare conditions

As a member of the Newborn Screening Collaborative CHF is pleased to announce the launch of a new short film which aims to create awareness and encourage conversation, action and change in relation to the screening of newborns in the UK.  Through our work with the families of children with heart conditions, the importance of […]

Oct 05th 2023 - Lacie’s story

Lacie’s story told by her mother Kayleigh  At my twenty-week pregnancy scan I was told that Lacie’s heart hadn’t formed properly, this was a terrible shock but it gave me time to prepare for her arrival with the knowledge that she would probably need surgery in order to survive.  Lacie was born early after exactly […]

Sep 11st 2023 - BeWILDerwood Norfolk Activity Day 2023

CHF is excited to invite children with heart conditions* and their families to a fun day** of outdoor and creative activities at BeWILDerwood, Norfolk Wednesday 25th October 2023! The whole family can spend the day running, whizzing and clambering on the sustainable wooden play structures, from aerial ropewalks to climbing walls, balancing logs and  muddled […]

Aug 05th 2023 - Fundraise for CHF with the Inflatable 5K

Take part in an Inflatable 5K event to raise money for CHF’s new Exercise Programme The Inflatable 5K events are just the first steps you can take toward supporting and fundraising for the new CHF Exercise Programme. The world’s largest and best fun run obstacle course the ‘Inflatable 5K’ has got even bigger and bouncier […]

Jul 31st 2023 - A national strategy to address the James Lind Alliance priorities for children and adults with congenital heart disease

CHF is pleased to have taken part in the development of this newly published strategy which addresses the priorities for research on children and adults with congenital heart disease. Read the full strategy document here. Top 10 priorities for child/antenatal congenital heart disease research 1. How can damage to organs (e.g. heart, brain, lung, kidney, […]

Jul 11st 2023 - Activity days in the North East and North Cumbria

Are you a family living in the North East and North Cumbria? Do you know a child or young person living with congenital heart disease? Join CHF for some interactive day of fun and learning! Scan the QR code or click on the image to find out more

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