How we help
Children’s Heart Federation helps children with heart defects and their families by:
Providing direct support
- Information line for parents and carers of children with heart conditions 0300 561 0065
- Two series of information sheets, one on heart conditions and another on caring for children with heart conditions
- Resources for children with heart conditions such as Molly’s Dollies a rag doll with surgical scars and Rosie goes red, Violet goes blue and Sky the expert story books to help children and their siblings understand heart conditions
- Providing medical equipment for children with heart conditions such as INR machines
- The Heart2Heart newsletter containing information and news for the cardiac community
- Pulse Parents – a private Facebook forum where parents can discuss topics relating to children with heart conditions
- Coffee and questions – online events on a variety of subjects relevant to families with children with heart conditions, each event has a speaker and the opportunity to ask questions from the audience
Campaigning for support and services
- Working in partnership with other organisations to develop policy and campaign on issues affecting families of children with a heart condition
- Consulting with families through meetings and surveys, to understand their priorities for services
- Regular briefings on issues of interest to the carers of a child with a heart problem
Research
- CHF is involved in research projects benefitting children with heart conditions and their families
If you find any of the information in these pages useful, please consider making a donation or offering support to the UK’s leading children’s heart charity.
