Caring for Heart Children

Talking with doctors and nurses

• Medical terms
• Talking to Doctors
• Getting a second opinion

Before birth

• What causes congenital heart conditions?
• Prenatal diagnosis

Medicines, devices, equipment and surgery

• Medicines for heart children
• Warfarin
• Immunisations
• Pacemakers
• Heart transplants

Scars and congenital heart disease (CHD) surgery

• Scars and congenital heart disease (CHD) surgery

Transition: The move from paediatric to adult congenital heart disease (CHD) services

• Transition

Feeding

• Feeding children with heart conditions
• Tube feeding children with heart conditions

Dental health

• Your child’s teeth

Education 

• How to write an individual Health Care Plan (IHP)
• Template for an IHP heart related (produced by Little Hearts Matter)
• Template for an IHP generic (produced by the Health Conditions in Schools Alliance)
• Information for teachers
• Nursery and early years
• Special educational needs

Exercise

• parkrun guidelines for children with heart conditions

Leisure

• Holidays with your heart child
• Groups that provide family holidays

Tattoos and body piercing

• Tattoos and Body Piercing

Finance and benefits

• Working with a heart child
• Disability Living Allowance
• Hardship Funds

Family members

• Being a grandparent to a heart child

Bereavement

• Grief for the loss of your heart child

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