Talking with doctors and nurses

• Medical terms
• Talking to Doctors
• Getting a second opinion
• Accessing medical records – your rights

Before birth

• When your baby has a potential heart condition 
• What causes congenital heart conditions?
• Prenatal diagnosis

Medicines, devices, equipment and surgery

• Medicines for heart children
• Warfarin
• Immunisations
• Pacemakers
• Heart transplants
• Preparing your child for surgery

Scars and congenital heart disease (CHD) surgery

• Scars and congenital heart disease (CHD) surgery

Transition: The move from paediatric to adult congenital heart disease (CHD) services

• Transition

Feeding

• Feeding children with heart conditions
• Tube feeding children with heart conditions

Dental health

• Your child’s teeth

Education 

• Template for an IHP heart related (produced by Little Hearts Matter)
• Template for an IHP generic health condition (produced by the Health Conditions in Schools Alliance)
• Information for teachers
• Nursery and early years
• Special educational needs and Educational Healthcare Plans

Exercise

• parkrun guidelines for children with heart conditions

Leisure

• Holidays with your heart child
• Groups that provide family holidays

Tattoos and body piercing

• Tattoos and Body Piercing

Finance and benefits

• Working with a heart child
• Disability Living Allowance
• Hardship Funds

Family members

• Being a grandparent to a heart child

Bereavement

• Grief for the loss of your heart child

To report a problem with any of our information products, to make a comment, or request bibliography or references used please contact us or complete our feedback form.

If you require any of our information sheets in another language please email us stating what information sheet and language you require.