News
20/12/16 - Christmas 2016 & New Year 2017!
The Children’s Heart Federation office will be closed for Christmas from 21st December 2016. The office will open again on 4th January 2017. If you require any information regarding congenital heart disease over the Christmas and New Year break please email info@chfed.org.uk Wishing you a Merry Christmas and a Happy New Year from the Children’s […]
19/12/16 - A special CHF Thank You through Christmas & New Year
It’s the season for giving and CHF would like to give a biggest ‘Thank You’ to all our heart children and families for inspiring us throughout the past months of 2016 and continuing to do so into a brand new year to be! CHF also say a massive ‘Thank You’ to our amazing fundraisers and […]
17/12/16 - An invitation to get involved in NHS England’s review into paediatric critical care and specialised surgery
NHS England is leading a national review into paediatric critical care and specialised surgery. The aim of the review is to ensure that services are sustainable for the future and that they deliver high quality, fair and equal care to children and families, as close to home as possible. NHS England is keen to test […]
12/12/16 - Special needs support for heart children
CHF focus this week on our heart children’s special needs within a school setting which may include physical and learning challenges. CHF has a Factsheet on: ‘Your Child and Special Educational Needs’ that is free to access and download. Please share a challenge in a school setting that’s been overcome with your heart child and […]
01/12/16 - Transition support for young people with congenital heart disease (CHD)
Are you a young person who will soon transition to receiving support from an adult multidisciplinary team with congenital heart disease (CHD) specialism? Please share with CHF about what has worked well for you and what you would like to see improved — literally. Your here & now reality, experience & views of CHD are […]
05/12/16 - Support for all those affected by a sudden young cardiac death
CHF member group Cardiac Risk in the Young (CRY) offers emotional support to bereaved family and friends following a sudden young cardiac death. Please know that CRY’s network of volunteers are trained in a British Association of Counselling (BAC) accredited course so that they can fully support those who have been bereaved by a sudden […]
Nov 30th 2016 - CHF’s new fathers’ points of view request on CHD & family support
An international research study noted in the Karolinska Institutet has focused on new fathers’ concerns including: money upbringing the health of their child. CHF would like to hear from our new fathers on their views too. Please share your experiences via info@chfed.org.uk or via our Facebook page. We’d like to start a conversation on this […]
24/11/16 - Congenital Heart Disease (CHD) & Disability Living Allowance (DLA) meeting at Parliament on 29 November 2016
Tuesday 29 November 2016 will bring together national children’s heart and adult congenital heart charities to a meeting in Parliament to obtain MPs’ support in getting children’s heart disease recognised in the Disability Living Allowance Assessor Pack. We need your help to get as many MPs to attend the meeting as possible. The event will […]
21/11/16 - CHF’s Christmas Lights Challenge & CHD Awareness 2016
CHF launch our Christmas Lights Challenge! How long will it take our heart children and families to unravel the Christmas lights this year? CHF’s Molly’s dollies took a record 5 minutes! And they’ve taken this photo to prove it! Share your record time too and why not donate your minutes in pounds to CHF’s JustGiving […]
14/11/16 - CHD & DLA Awareness Event at Parliament on 29 November 2016
On Tuesday 29 November 2016 national children’s heart and adult congenital heart charities are holding a meeting in Parliament to obtain MPs’ support in getting children’s heart disease recognised in the Disability Living Allowance Assessor pack. We need your help to get as many MPs to attend the meeting as possible which will be hosted by: […]
