News
09/02/17 - Organ Donation: The profoundest gift
CHF are participating today in the Organ Donation Campaign Forum Meeting. Please let CHF know via info@chfed.org.uk if there are specific views that you would like to be encompassed in this organ transplantation awareness meeting. Please help us increase awareness of organ donation. All communities and individuals can make a profound change. Further information about […]
06/02/17 - CHD Awareness 2017
The Children’s Heart Federation (CHF) is doubling our congenital heart disease (CHD) awareness message this year. Let us know if there are specific issues that you would like to be addressed. This week CHF will be attending a National Council for Children’s Health & Wellbeing meeting with other key CHD and NGO representatives . Please […]
31/01/17 - Heart Month 2017
CHF’s Heart Month Twenty – Seven – Teen! We’re aware from your feedback how our informational resources and Molly’s dollies help support heart children on their CHD journey. And thank you for taking time to send in comments & photos of your child & their Molly’s dolly. This February Heart Month, CHF’s Mollies have asked us […]
30/01/17 - CHF’s Fundraising Stars
New week and a new BIG thank you to CHF’s Fundraising Stars! It’s your fantastic fundraising efforts that help CHF to support our inspiring heart children and families! Every effort makes a world of difference. Thank you – to each one of you. Further information: http://www.chfed.org.uk/category/fundraising-stars/
25/01/17 - CHD update on devices to heat & cool blood during some heart surgery
If you or your child have had heart valve replacement or repair surgery, or a heart or lung transplant since January 2013 you should be aware that Public Health England (PHE), the Medicines and Healthcare Regulatory Authority (MHRA) and NHS England have carried out an investigation suggesting that some hospitals have used a device used […]
21/01/17 - Comment on Leeds doctor, Nihal Weerasena, being found guilty of misconduct
The Children’s Heart Federation (CHF) was disappointed but not surprised at the news that Dr Nihal Weerasena, a paeadiatric congenital heart surgeon from Leeds Teaching Hospitals Trust (LTHT) has been found guilty of misconduct by the Medical Practitioners Tribunal Service (MPTS). As the national charity concerned with congenital heart disease, CHF has access to a […]
Jan 12nd 2017 - Find out more about mini-tablets trial
Interested in knowing about accurate dosaging of medicine for children? The Children’s Heart Federation is a partner in a European-wide trial dispensing tiny tablets in order to provide accurate dosages of Enalapril to children under 12. If anybody would like to know more about this trial, please contact info@chfed.org.uk
09/01/17 - Congenital heart disease media
CHF focus this week on the importance of sharing information about congenital heart disease (CHD) via different media. Did you know CHF member group Downs Heart Group have created a free e-learning package for parents whose child has been diagnosed with Downs Syndrome? ‘This e-learning package is designed to empower parents who have a child […]
06/01/17 - Paediatric Critical Care and Paediatric Specialised Surgery Service Review
CHF has taken part in this week’s Paediatric Critical Care and Paediatric Specialised Surgery Third Sector and Patient/ Parent Groups Webinar. The webinar on 05 January 2017 was a platform to update participants on early thinking for the Paediatric Critical Care and Paediatric Specialised Surgery Service Review. The Chair was Dr Peter Wilson, Clinical Lead, […]
04/01/17 - Happy New Year from CHF!
A first ‘Hello!’ of a fantastic new year and week! And CHF are more than motivated to ensure 2017 is a year of walking that extra mile with our heart children and families! You may already know that CHF provides information materials on congenital heart disease (CHD) including Factsheets that are free to download; […]
