News
31/10/16 - Cardiac conditions in the young
Are you a young person who has recently been diagnosed with a heart condition? CHF member group Cardiac Risk in the Young (CRY) has written an e-booklet called: Cardiac Conditions in the Young: From ARVC to WPW This downloadable booklet provides a clear explanation on medical terms and is specifically written for a newly diagnosed […]
24/10/16 - Communicating about cardiomyopathy
Are you a medical professional with patients presenting with cardiomyopathy? Please know that CHF member group Cardiomyopathy UK has a support network of affected volunteers who are willing to speak with newly diagnosed patients via the phone or email. Further information: http://www.cardiomyopathy.org/medical-professionals/mp
17/10/16 - British Congenital Cardiac Association (BCCA) AGM 2016
The Annual Meeting of the British Congenital Cardiac Association (BCCA) will take place on: 23 – 24 Nov 2016 at the East Midlands Conference Centre, Nottingham. Sessions will include: Ethical dilemmas in congenital heart disease (CHD) from fetus to adult; Advances in imaging; Preventing sudden death in the young. Further information: http://www.bcca2016.co.uk/
10/10/16 - Congenital heart disease and pacemakers
Hearing that your child may require a pacemaker may be an understandably challenging moment. And clear impartial information is vital for you all as a family. Please know that CHF has a free and downloadable factsheet on pacemakers. Information that you can share and return to. Further information: http://www.chfed.org.uk/how-we-help/information-service/caring-for-heart-children/if-your-child-needs-a-pacemaker/
04/10/16 - Children’s & parents’ informed & willing consent to heart surgery
CHF are supporting research by Prof Priscilla Alderson and Dr Katy Sutcliffe from University College London (UCL), focusing on children’s and parents’ informed and willing consent to heart surgery. We are planning research with families and healthcare staff about how young patients aged 6-15 years are informed and involved in decisions about their heart surgery. […]
26/09/16 - Communicating about cardiomyopathy
Every question you may have about cardiomyopathy is really important to us. Please know CHF member group Cardiomyopathy UK has cardiomyopathy support nurses available to answer your questions and concerns. You are welcome to contact the cardiomyopathy nurses on-line or via phone and email. Communication is key and whether you or a loved one have […]
24/09/16 - A week to remember
CHF member group Cardiac Risk in the Young (CRY)’s Raising Awareness Week 2016 takes place: 19 – 27 November 2016 CRY’s core aim is to reduce the incidence of young sudden cardiac death through: raising awareness supporting the bereaved providing expert cardiac pathology screening for young people to identify cardiac conditions research to inform policy & […]
23/09/16 - High 5 for CHF’s Fiver Friday!
CHF’s Molly’s dollies are using their highlighters on every number 5 they come across today to invite us all to send CHF a fiver on Fiver Friday! And every five pounds will make a fantastic difference to brightening up a heart child’s congenital heart journey and help fund more Molly’s dollies for more CHF children […]
19/09/16 - CHD sports inspiration Alfie Hewett
CHF send many congratulations to Alfie Hewett — 100% inspiring wheelchair tennis player born with congenital heart disease. Alfie’s Tetralogy of Fallot has provided no limits to Alfie’s representing Great Britain at the 2016 Rio Paralympics and for winning silver medals in both the singles and doubles! A true CHF Champion twice over! Further information: […]
09/09/16 - Health conditions in schools
Does your child’s school require guidance and support in looking after children with health conditions? The Children’s Heart Federation (CHF) is part of the Health Conditions in Schools Alliance. This is a group of over 30 organisations working collaboratively to ensure children with health conditions receive the care that they require in schools. The alliance […]
