News
24/09/14 - Children’s Heart Federation welcomes NICE guidance for home-testing with INR machines
The Children’s Heart Federation today welcomes new guidance from the National Institute for Health and Care Excellence (NICE) which recommends self-monitoring devices for NHS use by people on long-term warfarin therapy. This guidance is one step closer to giving patients to choice to self-test their blood at home and the heart charity hopes this new […]
15/09/14 - Children’s Heart Federation urges swift and positive changes for heart children as care standards launched
On the launch today of the care standards and service specifications for children with congenital heart disease (Monday 15 September), the Children’s Heart Federation urges a swift decision about the shape of the future service so heart families can be reassured that their treatment and ongoing care will be of the highest quality wherever they […]
14/09/14 - Children’s Heart Federation urges swift and positive changes for heart children as care standards launched
On the eve of the launch of the care standards and service specifications for children with congenital heart disease (Monday 15 September), the Children’s Heart Federation urges a swift decision about the shape of the future service so heart families can be reassured that their treatment and ongoing care will be of the highest quality […]
11/07/14 - Disabled children failed by childcare system at every step, says inquiry
A cross party inquiry today reveals widespread failures for disabled children across the childcare system. MPs and Peers are calling for all parties to address the serious faults at the heart of our childcare system which has led to thousands of disabled children – from toddlers to teenagers – missing out on vital education and […]
10/06/14 - CHF JOINS EUROPEAN STUDY TO DEVELOP NEW HEART ‘MINI’ DRUG FOR CHILDREN
CHF have joined a five-year study funded by the EU Commission to develop a child friendly form of an existing drug that will allow treating children of all ages with heart problems. The LENA study will trial the drug, Enalapril (ACE inhibitor) in the new form of mini-tablets, which are less than 3mm and quickly […]
29/05/14 - Family Weekend & Dragon Boat Challenge 2014
About the Weekend From the 12th-18th May we celebrated Children’s Heart Week. This year we had lots of exciting events going on; from Bring a Bear picnics to Parliamentary drop-ins. Two of our most exciting events took place at the end of Children’s Heart week. 13 families were taken on a weekend trip to the bustling […]
15/05/14 - CHF welcome new duties to support children with medical conditions in school
The Children’s Heart Federation have welcomed new legal guidance to improve support in schools for over 1 million children with long-term medical conditions including for children living with Congenital Heart Disease. From September, schools in England will be legally required to provide high quality support to children with a medical condition. The guidance sets out […]
07/05/14 - BABIES ARE SET TO RECEIVE HEART TEST TO SAVE LIVES
The UK’s leading children’s heart charity is delighted all babies in the UK are set to receive a life-saving test to detect heart conditions at birth. The Children’s Heart Federation (CHF) welcomes the announcement from Public Health England to pilot Pulse Oximetry screening on newborns and hopes testing will be rolled out to all hospitals […]
07/05/14 - “CONGENITAL HEART COMMUNITY HELPED KEEP ME GOING” SAYS CHF TRUSTEE ON RUNNING LONDON MARATHON
Paul Willgoss – CHF trustee has praised parents and supporters of children born with heart conditions as he took on the London Marathon this month. Paul, who was born with the heart condition Tetralogy of Fallot, received many messages of support including via facebook and twitter which spurred him onto successfully complete the 26-mile run. […]
17/04/14 - LOCAL FATHER SETS OUT ON EUROPEAN CYCLE CHALLENGE TO RAISE MONEY FOR SON WITH HEART CONDITION
On April 30th Swindon’s Richard Stocker is setting out to complete a gruelling 320 mile European bike ride in just four days to raise money for the Children’s Heart Federation. CHF has supported his son Lewis, who was born with the heart condition, Aortic Stenosis and at just 14 years has already had three open […]
