News

11-17 May 2015

11/06/15 - Children’s Heart Week: 11 – 17 May 2015

Children’s Heart Week: 11 – 17 May 2015 Each May the CHD community run activities and raise awareness and funds during Children’s Heart Week. Check out the amazing things that heart groups ran all over the country this year. Have a look below to see what CHF was up to. Heart Week Highlights [justified_image_grid row_height=250 overlay=off […]

16-17 May 2015

16/04/15 - Down’s Heart Group Conference and Family Fun Weekend

Lifelong Learning Conference On Saturday 16th May 2015 At Combe House Hotel, Holford, Bridgwater, Somerset, TA5 1RZ Speakers included; Prof Rob Tulloh – consultant paediatric cardiologist, Dr Ben Thomas – LD adviser to the government, Gwen Moulster – Lead on Health Equalities Framework and Suzanne Hodgkiss – education specialist. Afternoon workshops, crèche, stalls….. The weekend […]

7, 14, 21 May 2015

22/04/15 - Integrated Congenital Cardiac Care in Scotland

Scottish Congenital Cardiac Network (SCCN) needed your input to shape a structure that meets the needs of patients, their families and carers. Glasgow 7th May, 6-8pm Teachers Building St Enochs square (Videoconferencing available) Edinburgh 14th May, 6-8pm Holiday Inn, Corstorphine Road Aberdeen 21st May, 6-8pm Jurys Inn, Union Street

21 Apr 2015

21/04/15 - Children’s Heart Federations response to NHS England’s consultation on investing in specialised services

The Children’s Heart Federation (CHF) is dedicated to helping children with congenital or acquired heart disease and their families in Great Britain and Northern Ireland. Congenital Heart Disease (CHD) is a general term used to refer to a series of birth defects affecting the heart. It is the most common type of birth congenital condition […]

9-10 May 2015

02/04/15 - Legoland Discovery Centre Sleepover

CHF had an awesome-fun evening of Lego-based fun at the super-awesome Legoland Discovery Centre in Manchester, culminating in an awesome sleepover in the Discovery Centre!  This fun evening took place on the weekend of the 9th May We had fun on the super-special Lego Factory tour, a great time on the Kingdom Quest Laser Ride, we […]

5 May 2015

16/04/15 - Chatsworth Clay Shoot

The Chatsworth Charity Clay Shoot took place at the world-famous Chatsworth Estate in Derbyshire on the 5th May. CHF benefited from the money raised at this unique event. For more information go to ‘dcclayshoot’.

2nd Apr 2015

02/04/15 - Statement in response to Open Heart online journal report

Children’s Heart Federation supports a focus on survival outcomes and measures of morbidity for heart children The Children’s Heart Federation supports the recommendation to focus on survival outcomes for heart children in a recent online report published in ‘Open Heart’. Despite the rise in the complexity of cases, the survival of children with congenital heart […]

24-26 Apr 2015

16/04/15 - CHF500 Dunlop 24hr Race

Welcome to Team CHF500 our brand new fundraising venture in the supercharged world of motorsport! Following the generous ‘donation’ of a complete endurance race team, we ran a Porsche 968 in the Dunlop 24hr, at the world-famous Silverstone Race Track. This is a charity team, all proceeds and sponsorship went to the Children’s Heart Federation. The […]

24-25 Apr 2015

02/04/15 - ECHDO Meeting

ECHDO’s (European Congenital Heart Disease Organisation) annual meeting was held in Milan, Italy on the 24 – 25 of April. The main focus of the meeting included ‘Patient empowerment and cardiac rehabilitation’. Lecturers included Danielle Stephens Director of Programs of the Adult Congenital Heart Association in the USA and Prof. Roberto Tramarin, director of the department of […]

24 Apr 2015

02/04/15 - London Children’s Ballet – Snow White

CHF were once again lucky enough to secure several places for this years special performance of Snow White by the London Children’s Ballet. London Children’s Ballet is a registered charity dedicated to providing opportunities for emerging artists and providing access to ballet productions to those who could not otherwise attend a performance without some kind of […]

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