NHS England were in the process of developing a PREMS Proposal in the hope of establishing a PREMS survey for Congenital Heart Disease. The national NHS survey programme includes a number of surveys designed to capture patient reported experience measures (PREMS).

Within congenital heart disease services there is a real desire for PREMS to be developed and used across the specialist centres and as a result of this the Somerville Foundation developed and Adult Patient Experience Survey with MSB consultancy collating and reporting on the results.

The proposal is for a digital only survey which would be accessed via links/QR codes and can be completed by families/carers, children and young people and adults. The survey would be promoted through:
• publicity within the specialist centres;
• the activities of patient and public groups;
• links established on key websites (e.g. NHS England, the National Congenital Heart Disease Audit, the National Congenital Anomaly and Rare Disease Registration Service)

If you have any questions, do not hesitate to contact us or NHS England so that you can find out more.