News
17/08/15 - Response from CHF on the proposal for establishing a PREMS survey for Congenital Heart Disease
Children’s Heart Federation supports the development of PREMs (Patient Reported Experience Measures) and calls also for the development of PROMs (Patient Reported Outcome Measures) because we believe that together they form a useful tool for patients to provide direct feedback on their care to help drive improvement in services. We feel both are needed because […]
30/07/15 - NHS Maternity Review National Tour
The NHS Maternity Review wants to hear from you! Please come and share your views and experiences of maternity services and care. Over the next few months, the NHS Maternity Review will be hosting a number of drop in events around the country as part of its national tour to hear how women, their families […]
05/08/15 - NHS England PREMS Survey
NHS England were in the process of developing a PREMS Proposal in the hope of establishing a PREMS survey for Congenital Heart Disease. The national NHS survey programme includes a number of surveys designed to capture patient reported experience measures (PREMS). Within congenital heart disease services there is a real desire for PREMS to be developed and […]
20/07/15 - Wild Hearts Charity Clay Pigeon Shoot
The Wild Hearts Clay Pigeon Shoot was a glorious day. Thank you to all our wonderful and generous guests who made it a fantastic experience. The event was hosted by the Englefield Estate, the shoot run by the Royal Berkshire Shooting Group and catering provided by Andeva Gastronomy. A perfect package. Looking forward to next year already! See […]
28/04/15 - CHF500 Dunlop 24hr
Revving up to Raise Awareness and Money Welcome to Team CHF500 our brand new fundraising venture in the supercharged world of motorsport! Following the generous ‘donation’ of a complete endurance race team, we ran a Porsche 968 in the Dunlop 24hr, at the world-famous Silverstone Race Track. This is a charity team, all proceeds and […]
22/07/15 - Statement urging a swift response into implementation of congenital heart standards
News statement: 22 July 2015 Children’s heart charity urges swift implementation of congenital heart standards warning of unstable heart services for children The Children’s Heart Federation hopes that the new congenital heart care standards and service specifications will be agreed by the NHS England Board tomorrow (23 July 2015). The new standards have been recognised […]
21/07/15 - Tips when running for a charity!
Running for Charity… Paul Willgoss Keen runner and hiker, and CHF trustee, Paul Willgoss, gives 6 tips on running for a charity. A couple of people have asked for my tips and tricks for running for charity in the last couple of weeks, so I thought I’d write a summary of my sage […]
14/07/15 - Review of Children’s Cardiac Services Bristol
The Independent Review of Children’s Cardiac services in Bristol held two events on 15th August, giving young people a chance to share their views and experiences of any aspects of their treatment. The sessions were held on Saturday 15th August at the Bristol science and discovery centre, At-Bristol. There was a morning session from 11am-1.30pm […]
24/07/15 - Beale Park Summer Family Day
CHF held their summer family day for families in the South on the 18th July at Beale Park in Berkshire. What was on offer at Beale Park: An open wildlife park with a brilliant array of exotic animals from meerkats and lemurs to capybaras and owls and much, much more The bright red, 4 carriage, Beale Railway and an […]
11/06/15 - Parents Wanted: Help Improve the Communication of Surgery Outcomes for Heart Children
Are you a heart parent and would like to help us improve communicating surgery outcomes of heart children? We need to hear your ideas on how best to represent a website and it’s contents. When? Tuesday 30th June from 2:00 – 3:30pm Where? Central London *** Compensation for standard travel expenses will be provided, plus […]
