News

2nd Apr 2015

02/04/15 - Statement in response to Open Heart online journal report

Children’s Heart Federation supports a focus on survival outcomes and measures of morbidity for heart children The Children’s Heart Federation supports the recommendation to focus on survival outcomes for heart children in a recent online report published in ‘Open Heart’. Despite the rise in the complexity of cases, the survival of children with congenital heart […]

24-26 Apr 2015

16/04/15 - CHF500 Dunlop 24hr Race

Welcome to Team CHF500 our brand new fundraising venture in the supercharged world of motorsport! Following the generous ‘donation’ of a complete endurance race team, we ran a Porsche 968 in the Dunlop 24hr, at the world-famous Silverstone Race Track. This is a charity team, all proceeds and sponsorship went to the Children’s Heart Federation. The […]

24-25 Apr 2015

02/04/15 - ECHDO Meeting

ECHDO’s (European Congenital Heart Disease Organisation) annual meeting was held in Milan, Italy on the 24 – 25 of April. The main focus of the meeting included ‘Patient empowerment and cardiac rehabilitation’. Lecturers included Danielle Stephens Director of Programs of the Adult Congenital Heart Association in the USA and Prof. Roberto Tramarin, director of the department of […]

24 Apr 2015

02/04/15 - London Children’s Ballet – Snow White

CHF were once again lucky enough to secure several places for this years special performance of Snow White by the London Children’s Ballet. London Children’s Ballet is a registered charity dedicated to providing opportunities for emerging artists and providing access to ballet productions to those who could not otherwise attend a performance without some kind of […]

7-13 Sep 2015

28/04/15 - National Transplant Week 2015

This year’s National Transplant Week (NTW) Campaign ran from 7-13 September 2015. NHS Blood and Transplant (NHSBT)  updated everyone on the initial plans for this – as well as some of the wider work across NHS Blood and Transplant that people may also be interested in. A lot of people contributed to making the previous […]

19 Sep 2015

06/07/15 - Children’s Heart Association – Parent’s Info Day

The Children’s Heart Association held a Parent’s Information Day on 19th September. The day took place at the Hilton Hotel, Manchester Airport from 10:00am to 4:30pm. The day was aimed at 4 groups of people: Parents of children with a heart condition New parents with their babies Children age 11-14 living with a heart condition Young adults […]

3 Mar 2015

03/03/15 - More donor hearts needed for transplants

Increasing numbers of people in the USA are developing heart failure, while heart transplant waiting lists are becoming longer, a new study published in the American Journal of Transplantation reveals. The study shows a 32% heart donor acceptance in 2010, with older donor age, female sex, and medical conditions predicting non-acceptance of hearts from donors. […]

9 Jan 2015

09/02/15 - Heart charity calls for heart donors for children

Today (9 February) The Children’s Heart Federation is holding a Parliamentary Reception during Heart Month to raise awareness of the need for more heart donors for children and young people.  Opinion polls in the UK show the vast majority of population is in favour of organ donation but evidence shows low levels of awareness and […]

19 Nov 2014

18/12/14 - Heart Surgery for Congenital Heart Defects – Science or Art?

Professor Martin Elliott’s latest lecture explains how CHD surgery has developed and describes the disruptive effect of the introduction of cardiopulmonary bypass, the impact of new materials, the deeper understanding of the stresses of surgery and the impact of new drugs. Watch ‘Heart Surgery for Congenital Heart Defects – Science or Art?’

16 Dec 2014

16/12/14 - CHF Winter Wonderland

Winter Wonderland 2014 – a Great Success! 12-15 December 2014, Butlins Holiday Park, Bognor Regis The 2014 Winter Wonderland trip was a wonderful weekend, enjoyed by all.  CHF took 21 families away for a Christmas themed weekend at the fantastic Butlins at Bognor Regis. The weekend included the indoor water park, a Christmas banquet, ice skating, a […]

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