13/07/17 - CHD Consultation: Further Questions and Answers
NHS England has provided information addressing questions that have continued to be raised during the Congenital Heart Disease (CHD) Consultation. To find out more about these questions including ‘Why 125 operations per surgeon, and what is the evidence for this?’ as well as a further 23 questions relating to the consultation, please see further information […]
11/07/17 - NHS Annual Organ Donation and Transplant Activity Report 2016/2017
The total number of patients whose lives were saved or improved by an organ transplant during this time frame increased by 3% to 4,753. Key messages: 6 million people on the opt-in Organ Donor Register (ODR) at March 2017 (36% of the population); 204,518 people on the opt-out ODR at March 2017 with a further […]
Jun 28th 2017 - June 27 – NHS Blood and Transplant 2017
This week we attended the NHS Blood and Transplant 2017 event. Children with heart conditions rely on people to donate their blood and sometimes organs to give them a better life or to save their life. So the CHF supports NHSBT in their work to encourage donors to sign up and to make blood and organ […]
Jun 29th 2017 - June 15 2017 – Wilkins and sons strawberry race
Along with Hartley Bear we attended Wilkins and sons strawberry race, the theme was film stars and we watched Elvis Presley, two Audrey Hepburns and the Blues Brothers compete to see which team could pick the most strawberries within an hour. Commercial teams pay to enter a team into the race and the money raised […]
19/06/17 - NHS Congenital Heart Disease Consultation
The NHS Congenital Heart Disease (CHD) Consultation has scheduled meetings for the following dates: 19 June 2017 Bristol Royal Infirmary 22 June 2017 Lincolnshire New Life Centre Sleaford 24 June 2017 Royal Brompton Hospital 27 June 2017 Newcastle Civic Centre 27 June 2017 Leicester City Council 28 June 2017 Middlesbrough St […]
16/06/17 - Changes to Adult Congenital Heart Disease Services in the North West
Important Information: 16 June 2017 ‘NHS England is currently conducting a national public consultation on how it will put in place new standards for hospitals providing congenital heart disease services in England. It follows the publication in 2015 of a new set of quality standards for all hospitals providing congenital heart disease services covering both […]
Jun 08th 2017 - Email up and running
We are pleased to report that we now have normal email access. Please contact us at info@chfed.org.uk if you require information or assistance.
22/05/17 - Covering every aspect of the CHD journey
‘Ask Me Anything’ is the new app in development that is currently being created by young adults from CHF partner group Evelina Children’s Heart Organisation (ECHO) together with an app developer to improve transition from children’s to adults’ congenital heart disease (CHD) services. Designer Emily explains more: “The website and app will enable young people […]
19/05/17 - Faulty defibrillator: users urged to check battery connection
People and organisations should check public access defibrillators for a technical fault, the Medicines and Healthcare products Regulatory Agency advised today. People and organisations should check if they have the defibrillator model, LIFEPAK 1000 Automatic External Defibrillators (AED), because a technical fault with some of them means they may not deliver an electric shock to […]
10/05/17 - Resilience and congenital heart disease (CHD)
Congenital heart disease (CHD) resilience comes in many shapes and forms. Talking, reading and sharing information about it are the elements that hold it together. CHF’s Molly’s dollies choose: ‘Rosie goes red, Violet goes blue’ as their CHF book and narrative to share this important information. Would you like to introduce this CHD book to […]
