Nov 06th 2023 - CHF gives recognition to rare conditions

As a member of the Newborn Screening Collaborative CHF is pleased to announce the launch of a new short film which aims to create awareness and encourage conversation, action and change in relation to the screening of newborns in the UK.  Through our work with the families of children with heart conditions, the importance of […]

Oct 05th 2023 - Lacie’s story

Lacie’s story told by her mother Kayleigh  At my twenty-week pregnancy scan I was told that Lacie’s heart hadn’t formed properly, this was a terrible shock but it gave me time to prepare for her arrival with the knowledge that she would probably need surgery in order to survive.  Lacie was born early after exactly […]

Jul 31st 2023 - A national strategy to address the James Lind Alliance priorities for children and adults with congenital heart disease

CHF is pleased to have taken part in the development of this newly published strategy which addresses the priorities for research on children and adults with congenital heart disease. Read the full strategy document here. Top 10 priorities for child/antenatal congenital heart disease research 1. How can damage to organs (e.g. heart, brain, lung, kidney, […]

Jul 11st 2023 - Activity days in the North East and North Cumbria

Are you a family living in the North East and North Cumbria? Do you know a child or young person living with congenital heart disease? Join CHF for some interactive day of fun and learning! Scan the QR code or click on the image to find out more

Mar 28th 2023 - Family day at Whitemoor Lakes May 20th 2023

  Do you know a child with a heart condition who loves adventure and challenges?     Then they are invited to attend the CHF activity day on May 20th at Whitemoor Lakes, near Lichfield and can bring along the whole family, (two adult parent or carers plus siblings). There will be a range of […]

Feb 28th 2023 - What we go through every day

Teenager signs a powerful message to other young people with heart conditions As heart month draws to a close a teenager from Crewe has sent out a powerful message in British Sign Language (BSL) to other young people with heart conditions. Robert Allen gives an expressive and emotional performance signing the words of Fight Song […]

Feb 08th 2023 - CHF are recruiting for three new steering groups

Help CHF and children with heart conditions nationwide by sharing your experience in one of our steering groups. CHF are aiming to recruit for three new steering groups that will advise on issues relating to children with congenital or acquired heart conditions through lived and professional experience. We want to hear from: Young people with […]

Feb 07th 2023 - Baldev Singh

Baldev Singh and his team were fundraising for CHF in several ways this year. Organising Christmas and Easter raffles, distributing collection tins, and organising some very amazing physical activities. Team YOLO (you only love once) Sky’s the Limit have completed their Skydive! Team Stingrays have completed their swimathon! Team Rush Hour completed their Bike ride […]

Feb 07th 2023 - JFK Chase the Sun

These amazing group of SEND teachers are running the Chase the Sun Olympic park run this year raising funds for CHF! They are doing such incredible work to start with and then deciding to raising money for CHF and the work we do for heart children and their families! Hats of to you all! Show […]

Feb 07th 2023 - CHF Fundraising stars in our hearts for 2023

Thank you to all our CHF fundraising stars in our hearts: Between them they are collecting used stamps, raising funds through our collection tins, sky-diving, trekking in China, cycling, race nights, swimming and running marathons. 🌟Captain Beany🌟 🌟Team the usual suspects London to Brighton Cycle 2023🌟 🌟Michael Browne🌟 🌟Coral Allon🌟 🌟Laura Winterburn 🌟 🌟Three Counties […]