Apr 14th 2021 - Join in

CHF SUPPORTERS INVITED TO CELEBRATE CAPTAIN SIR TOM’S ACHIEVEMENTS IN SPECIAL FUNDRAISING EVENT New fundraising initiative over Captain Tom’s birthday weekend of Friday 30 April to Bank Holiday Monday 3 May to celebrate his life and amazing achievements Captain Tom 100 invites people all over the world to take on a challenge based around the number […]

Feb 22nd 2021 - World-first paediatric heart transplant technique boosts number of life-saving operations for children in the UK

Using a technique that ‘reanimates’ the heart outside of the body, Great Ormond Street Hospital, Royal Papworth Hospital and NHS Blood & Transplant expand the donor pool and perform six paediatric heart transplants in 2020 Great Ormond Street Hospital (GOSH) and Royal Papworth Hospital (RPH) have collaborated to introduce a world-first paediatric heart transplant technique […]

Jan 21st 2021 - The impact of the first wave of COVID-19 on those with lifelong conditions: a case study of congenital heart disease

CHF has been involved, alongside other heart-charities in the CHAMPION study, the first part of which looked at the impact of COVID-19 on adults and children with heart conditions. CHF ran an online forum in a closed Facebook group where parents could answer a series of questions and also debate with each other. The results […]

21 Dec 2020

21/12/20 - Impact of COVID-19 on patients with congenital heart disease

A summary of international papers researching the impact of COVID-19 on patients with congenital heart disease. Download here. If your child is unfortunate enough to text positive for COVID-19 please inform their cardiac team so their data can be added to the UK study.  

Nov 18th 2020 - Webinars for parents of children with heart conditions

Supporting your child coming into hospital. 23rd November 2020, 11am. Managing impact of a having a child with a heart condition, for parents. 30th November 2020, 1pm. Supporting siblings of a child with a heart condition. 7th December 2020, 11am

Nov 12nd 2020 - Updated information from BCCA and RCPCH in light of new lockdown.

The BCCA (British Congenital Cardiac Association) have updated their guidance for patients, parents, charities and support groups in light of the national lockdown for England. They can be read here. This advice is that those in the clinically extremely vulnerable group no longer need to follow previous shielding advice. Guidance advises attending school and returning […]

Oct 19th 2020 - Sophia’s story

Told by her mother Tas On the 22 February 2016 I was absolutely delighted to hold Sophia in my arms for the first time.  Apart from slight jaundice and not feeding much and being very sleepy, she was perfect, she was my 3rd child and weighing 9lb, also the heaviest.  I was told babies are […]

Sep 02nd 2020 - British Congenital Cardiac Association – update on returning to work and education

The BCCA has provided an update on returning to education for children with heart conditions. It can be read here. Helpful links: RCPCH talking to families British Heart Foundation children returning to school RCPCH shielding and education  

Aug 26th 2020 - Hope’s story

Told by her mother Caroline Hope was born on the 24th January 2020 with Trisomy 21. This brings with it a list of possible medical issues, including heart defects and so she was given many scans at a just a day old. The scans revealed that Hope had a partial ASD and it was left to hopefully […]

Aug 24th 2020 - CHF COVID-19 and beyond

CHF has continued to support children with heart conditions and their families during the pandemic and are making plans for the future. Read about what we have been doing here.