Feb 22nd 2021 - World-first paediatric heart transplant technique boosts number of life-saving operations for children in the UK

Using a technique that ‘reanimates’ the heart outside of the body, Great Ormond Street Hospital, Royal Papworth Hospital and NHS Blood & Transplant expand the donor pool and perform six paediatric heart transplants in 2020 Great Ormond Street Hospital (GOSH) and Royal Papworth Hospital (RPH) have collaborated to introduce a world-first paediatric heart transplant technique […]

Aug 13rd 2020 - Can you help us improve the quality of services for congenital heart disease?

The Children’s Heart Federation are involved in a new study called CHAMPION to try to improve how the quality of services for congenital heart disease (CHD) is measured and reported in England. We want to hear your views on what makes services good quality, which includes understanding how COVID-19 has affected your experience of health […]

Jul 21st 2020 - Miley’s story

Told by her mother Natalie We had been waiting for the birth of our daughter Miley for years. We had fertility treatment to help conceive her and we were so excited to meet her. I had no complications in my pregnancy and we were told at the scans that the baby was healthy. However, at […]

Jun 18th 2020 - Feeding toddlers with heart conditions

Children with heart conditions are often reluctant eaters so need to get the most out of everything they eat and drink. This  book is written by paediatric dietician Luise Marino specifically to help with feeding children with medical conditions. It contains recipes and practical advice about feeding a child with a medical condition. If you […]

Jan 06th 2020 - Harper’s story

Told by her mother Ellie On 24th May 2019, we welcomed our beautiful baby girl Harper Sophie Dottie Hall into the world, weighing a tiny 6 lbs 15 oz she was perfect. We had found out at our 20-week scan in January 2019 that Harper had a congenital heart defect called Tetralogy of Fallot’s but […]