News

7-13 Sep 2015

28/04/15 - National Transplant Week 2015

This year’s National Transplant Week (NTW) Campaign ran from 7-13 September 2015. NHS Blood and Transplant (NHSBT)  updated everyone on the initial plans for this – as well as some of the wider work across NHS Blood and Transplant that people may also be interested in. A lot of people contributed to making the previous […]

19 Sep 2015

06/07/15 - Children’s Heart Association – Parent’s Info Day

The Children’s Heart Association held a Parent’s Information Day on 19th September. The day took place at the Hilton Hotel, Manchester Airport from 10:00am to 4:30pm. The day was aimed at 4 groups of people: Parents of children with a heart condition New parents with their babies Children age 11-14 living with a heart condition Young adults […]

3 Mar 2015

03/03/15 - More donor hearts needed for transplants

Increasing numbers of people in the USA are developing heart failure, while heart transplant waiting lists are becoming longer, a new study published in the American Journal of Transplantation reveals. The study shows a 32% heart donor acceptance in 2010, with older donor age, female sex, and medical conditions predicting non-acceptance of hearts from donors. […]

9 Jan 2015

09/02/15 - Heart charity calls for heart donors for children

Today (9 February) The Children’s Heart Federation is holding a Parliamentary Reception during Heart Month to raise awareness of the need for more heart donors for children and young people.  Opinion polls in the UK show the vast majority of population is in favour of organ donation but evidence shows low levels of awareness and […]

19 Nov 2014

18/12/14 - Heart Surgery for Congenital Heart Defects – Science or Art?

Professor Martin Elliott’s latest lecture explains how CHD surgery has developed and describes the disruptive effect of the introduction of cardiopulmonary bypass, the impact of new materials, the deeper understanding of the stresses of surgery and the impact of new drugs. Watch ‘Heart Surgery for Congenital Heart Defects – Science or Art?’

16 Dec 2014

16/12/14 - CHF Winter Wonderland

Winter Wonderland 2014 – a Great Success! 12-15 December 2014, Butlins Holiday Park, Bognor Regis The 2014 Winter Wonderland trip was a wonderful weekend, enjoyed by all.  CHF took 21 families away for a Christmas themed weekend at the fantastic Butlins at Bognor Regis. The weekend included the indoor water park, a Christmas banquet, ice skating, a […]

06 Nov 2014

06/11/14 - Do you want to share your experiences to help others?

Are you a parent or carer of a child with a long-term medical condition or disability  who has been ill with a flu-like illness? www.healthtalk.org is a website about people’s real experiences of health and illness. We are looking for PARENTS with children who: Are 12 and under Have been ill with a flu-like illness […]

04 Nov 2014

05/11/14 - Congenital heart disease standards now translated in several languages

NHS England have produced materials to explain the consultation for the new congenital heart disease standards in:  • Polish • Punjabi • Hindi • Gujarati • Urdu • Tamil  They can be found at http://www.england.nhs.uk/ourwork/qual-clin-lead/chd/translated-materials/

29 Oct 2014

30/10/14 - Children’s Heart Federation welcomes report recommendations on heart surgery at Leeds General Infirmary

News statement: 29 October 2014 The Children’s Heart Federation welcomes the recent report on heart surgery at Leeds GI (28 October 2014) and hopes that the recommendations will be taken into account when the draft standards of care for congenital heart disease, which are currently out for public consultation, are finalised. The charity is pleased […]

22 Oct 2014

22/10/14 - The Heart: An Introduction

Join Professor Martin Elliott for an introduction to how the treatment of congenital heart disease can be viewed as an example of the complex mixture of technology, ethics, economics and science. Watch ‘The Heart: An Introduction’

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