News
06/11/14 - Do you want to share your experiences to help others?
Are you a parent or carer of a child with a long-term medical condition or disability who has been ill with a flu-like illness? www.healthtalk.org is a website about people’s real experiences of health and illness. We are looking for PARENTS with children who: Are 12 and under Have been ill with a flu-like illness […]
05/11/14 - Congenital heart disease standards now translated in several languages
NHS England have produced materials to explain the consultation for the new congenital heart disease standards in: • Polish • Punjabi • Hindi • Gujarati • Urdu • Tamil They can be found at http://www.england.nhs.uk/ourwork/qual-clin-lead/chd/translated-materials/
30/10/14 - Children’s Heart Federation welcomes report recommendations on heart surgery at Leeds General Infirmary
News statement: 29 October 2014 The Children’s Heart Federation welcomes the recent report on heart surgery at Leeds GI (28 October 2014) and hopes that the recommendations will be taken into account when the draft standards of care for congenital heart disease, which are currently out for public consultation, are finalised. The charity is pleased […]
22/10/14 - The Heart: An Introduction
Join Professor Martin Elliott for an introduction to how the treatment of congenital heart disease can be viewed as an example of the complex mixture of technology, ethics, economics and science. Watch ‘The Heart: An Introduction’
20/10/14 - Martinez & Partners Charity Clay Pigeon Shoot
The Amazing people at Martinez and Partners ran their annual charity clay pigeon shoot in July 2014. The Royal Berkshire Shooting School hosted the event that raised a huge £32,000! See below photos from the event. Martinez & Partners Clay Pigeon Shoot Gallery [justified_image_grid last_row=match]
14/10/14 - Children’s heart surgery to move from Belfast to Dublin
Children’s heart surgery will move to Dublin. We appreciate that some families hoped that surgery could remain in Belfast, but we support Heartbeat NI, that this is the best option for children needing hear surgery, particularly those with complex conditions. We note that it will take 12 -18 months to put everything in place and […]
25/09/14 - Latest Advice on Flu Vaccinations from ECHO (Evelina Children’s Heart Organisation)
For the latest advice, please do check out the following link: http://www.echo-evelina.org.uk/wp-content/uploads/2013/10/SEASONAL-VACCINATION-ADVICE-SEPTEMBER-2014.pdf
24/09/14 - Children’s Heart Federation welcomes NICE guidance for home-testing with INR machines
The Children’s Heart Federation today welcomes new guidance from the National Institute for Health and Care Excellence (NICE) which recommends self-monitoring devices for NHS use by people on long-term warfarin therapy. This guidance is one step closer to giving patients to choice to self-test their blood at home and the heart charity hopes this new […]
15/09/14 - Children’s Heart Federation urges swift and positive changes for heart children as care standards launched
On the launch today of the care standards and service specifications for children with congenital heart disease (Monday 15 September), the Children’s Heart Federation urges a swift decision about the shape of the future service so heart families can be reassured that their treatment and ongoing care will be of the highest quality wherever they […]
14/09/14 - Children’s Heart Federation urges swift and positive changes for heart children as care standards launched
On the eve of the launch of the care standards and service specifications for children with congenital heart disease (Monday 15 September), the Children’s Heart Federation urges a swift decision about the shape of the future service so heart families can be reassured that their treatment and ongoing care will be of the highest quality […]
