News
24/09/15 - Pulse Oximetry Pilot: Phase Two
The second phase of the pulse oximetry pilot commenced on 1st July 2015 with all pilot trusts aligning to the Newborn Pulse Oximetry Screening Pathway and Group B trusts that had not yet previously performed pulse oximetry commencing pulse oximetry screening. The Children’s Heart Federation has heard that the second phase of the pilot is […]
28/08/15 - Health & Care Innovation Expo 2015
NHS England ran a Health & Care Innovation Expo on 2-3 September 2015 in Manchester Central. This year’s Expo was organised by Patients and Information teams. There were a whole series of activities, events and sessions at this year’s Expo that highlighted their work with patients, members of the public, and the voluntary sector. There was […]
02/09/15 - Information Standard Network and Learn Event
NHS England will be running an Information Standard Network and Learn Event on September 23rd which will be covering Health Literacy. The event will be presented by Jonathan Berry from the Community Health & Learning Foundation. The event itself will be broken down into two elements and will cover; Impacts of Health and What can […]
26/08/15 - Chatsworth Summer Family Day
CHF held their summer family day for families at the Chatsworth Estate on Saturday 22nd August. What was on offer at Chatsworth: Bush-craft skills at the newly built Stickyard education centre and use of the adventure playground Access to the world-famous Chatsworth House and Gardens A visit to the delightful Chatsworth farmyard, with lambs, horses and […]
26/08/15 - Pulse oximetry pilot under way
The newborn pulse oximetry screening pilot has begun The aims of the pilot are to: • understand the impact of implementing newborn pulse oximetry screening on NHS services • find out if it is feasible to roll out pulse oximetry nationally as an addition to the existing newborn and infant physical examination tests within 72 […]
19/08/15 - Update on Bristol Review
Since issuing a call for evidence last summer, a substantial number of families have contacted the Review and have helped to build up a detailed picture of experiences of the Children’s Cardiac Service at Bristol Children’s Hospital. In addition, evidence from the Trust and other organisations has enabled inquiry into the issues raised. The Review […]
17/08/15 - Response from CHF on the proposal for establishing a PREMS survey for Congenital Heart Disease
Children’s Heart Federation supports the development of PREMs (Patient Reported Experience Measures) and calls also for the development of PROMs (Patient Reported Outcome Measures) because we believe that together they form a useful tool for patients to provide direct feedback on their care to help drive improvement in services. We feel both are needed because […]
30/07/15 - NHS Maternity Review National Tour
The NHS Maternity Review wants to hear from you! Please come and share your views and experiences of maternity services and care. Over the next few months, the NHS Maternity Review will be hosting a number of drop in events around the country as part of its national tour to hear how women, their families […]
05/08/15 - NHS England PREMS Survey
NHS England were in the process of developing a PREMS Proposal in the hope of establishing a PREMS survey for Congenital Heart Disease. The national NHS survey programme includes a number of surveys designed to capture patient reported experience measures (PREMS). Within congenital heart disease services there is a real desire for PREMS to be developed and […]
20/07/15 - Wild Hearts Charity Clay Pigeon Shoot
The Wild Hearts Clay Pigeon Shoot was a glorious day. Thank you to all our wonderful and generous guests who made it a fantastic experience. The event was hosted by the Englefield Estate, the shoot run by the Royal Berkshire Shooting Group and catering provided by Andeva Gastronomy. A perfect package. Looking forward to next year already! See […]
