News
21/04/15 - Children’s Heart Federations response to NHS England’s consultation on investing in specialised services
The Children’s Heart Federation (CHF) is dedicated to helping children with congenital or acquired heart disease and their families in Great Britain and Northern Ireland. Congenital Heart Disease (CHD) is a general term used to refer to a series of birth defects affecting the heart. It is the most common type of birth congenital condition […]
02/04/15 - Legoland Discovery Centre Sleepover
CHF had an awesome-fun evening of Lego-based fun at the super-awesome Legoland Discovery Centre in Manchester, culminating in an awesome sleepover in the Discovery Centre! This fun evening took place on the weekend of the 9th May We had fun on the super-special Lego Factory tour, a great time on the Kingdom Quest Laser Ride, we […]
16/04/15 - Chatsworth Clay Shoot
The Chatsworth Charity Clay Shoot took place at the world-famous Chatsworth Estate in Derbyshire on the 5th May. CHF benefited from the money raised at this unique event. For more information go to ‘dcclayshoot’.
02/04/15 - Statement in response to Open Heart online journal report
Children’s Heart Federation supports a focus on survival outcomes and measures of morbidity for heart children The Children’s Heart Federation supports the recommendation to focus on survival outcomes for heart children in a recent online report published in ‘Open Heart’. Despite the rise in the complexity of cases, the survival of children with congenital heart […]
16/04/15 - CHF500 Dunlop 24hr Race
Welcome to Team CHF500 our brand new fundraising venture in the supercharged world of motorsport! Following the generous ‘donation’ of a complete endurance race team, we ran a Porsche 968 in the Dunlop 24hr, at the world-famous Silverstone Race Track. This is a charity team, all proceeds and sponsorship went to the Children’s Heart Federation. The […]
02/04/15 - ECHDO Meeting
ECHDO’s (European Congenital Heart Disease Organisation) annual meeting was held in Milan, Italy on the 24 – 25 of April. The main focus of the meeting included ‘Patient empowerment and cardiac rehabilitation’. Lecturers included Danielle Stephens Director of Programs of the Adult Congenital Heart Association in the USA and Prof. Roberto Tramarin, director of the department of […]
02/04/15 - London Children’s Ballet – Snow White
CHF were once again lucky enough to secure several places for this years special performance of Snow White by the London Children’s Ballet. London Children’s Ballet is a registered charity dedicated to providing opportunities for emerging artists and providing access to ballet productions to those who could not otherwise attend a performance without some kind of […]
28/04/15 - National Transplant Week 2015
This year’s National Transplant Week (NTW) Campaign ran from 7-13 September 2015. NHS Blood and Transplant (NHSBT) updated everyone on the initial plans for this – as well as some of the wider work across NHS Blood and Transplant that people may also be interested in. A lot of people contributed to making the previous […]
06/07/15 - Children’s Heart Association – Parent’s Info Day
The Children’s Heart Association held a Parent’s Information Day on 19th September. The day took place at the Hilton Hotel, Manchester Airport from 10:00am to 4:30pm. The day was aimed at 4 groups of people: Parents of children with a heart condition New parents with their babies Children age 11-14 living with a heart condition Young adults […]
03/03/15 - More donor hearts needed for transplants
Increasing numbers of people in the USA are developing heart failure, while heart transplant waiting lists are becoming longer, a new study published in the American Journal of Transplantation reveals. The study shows a 32% heart donor acceptance in 2010, with older donor age, female sex, and medical conditions predicting non-acceptance of hearts from donors. […]
