News
04/05/17 - CHF’s Heart2Heart: Your CHD e-newsletter
A new month and a new look Heart2Heart e-newsletter! Read and share – we’d love to receive your feedback! Email us at: info@chfed.org.uk or via Facebook www.facebook.com/chfed Or Twitter @chfed Let’s make 2017 the most shared in the congenital heart disease (CHD) family! Further information: http://ymlp.com/zPUdBW
28/04/17 - CHD Consultation
Please note that the congenital heart disease (CHD) consultation by NHS England will now progress until: 17 July 2017 Further information: https://www.england.nhs.uk/blog/extending-the-congenital-heart-disease-consultation/
27/04/17 - Talking about CHD
Sharing information about disability with your heart child and siblings may be a positive way of growing in emotional resilience for each heart family and friends on their congenital heart disease (CHD) journey together. CHF’s Molly’s dollies offer a gentle and secure way of talking about the subject of CHD heart surgery scars and some […]
04/04/17 - Public Health England e-learning screening education
Public Health England has opened a new e-learning platform on screening information and education. All who would like to learn more about PHE screening are invited to register for this innovative new e-learning website. PHE Screening leads the national population screening programmes, which are delivered by the NHS. These identify apparently healthy people who may […]
03/04/17 - Daventry to Paris cycle ride
Good luck to Ruth Tomlin cycling from Daventry to Paris on 20th July to raise funds for CHF. https://www.justgiving.com/fundraising/Helen-tomlin1
29/03/17 - Workshop for parents – supporting siblings of disabled children
Parents in East London may be interested in this workshop run by Sibs a UK charity that supports people who grow up with or have grown up with a disabled brother or sister. This workshop will help parents of disabled children find ways of giving attention, information, and support to the other children in their […]
Mar 27th 2017 - Sign for life 2017
The Children’s Heart Federation supports the sign for life 2017 campaign. Read the story of Rhys an 11 year old who suffered from cardiomyopathy who received a heart transplant. Find out more about how organ donation can help save lives. Register here and remember to share your decision with your relatives.
22/03/17 - NHS to notify heart surgery patients of small risk of infection caused by heater cooler units
The NHS yesterday (Tuesday 21st March) took the precautionary step of writing to patients who have had certain types of open heart surgery to inform them that they may have a low risk of having contracted an infection caused by Mycobacterium chimaera (M. chimaera). Over the next two weeks, letters are being sent to patients in England, Scotland, Northern Ireland and Wales who have […]
Mar 20th 2017 - An opportunity for young people with CHD to be heard
The NHS would like to hear from young people with congenital heart disease with their opinions about the planned changes to CHD services nationwide. Find out more and complete the survey here. NHS survey for young people with CHD Please know that the NHS Congenital Heart Disease (CHD) consultation closed on 17 July 2017. Please watch CHF’s […]
13/03/17 - New study in the USA explores the benefits of pre-op 3D printed hearts
“This study is incredibly important because it will finally quantify what we know from first-hand experience: 3D-printed patient-specific models improve surgery, improve outcomes and result in lower treatment costs,” said Dr Yoav Dori, Peadiatric Cardiologist, Children’s Hospital of Philadelphia. “If we can empirically demonstrate this, it will be a game-changer for treating not only children […]
