News
09/01/17 - Congenital heart disease media
CHF focus this week on the importance of sharing information about congenital heart disease (CHD) via different media. Did you know CHF member group Downs Heart Group have created a free e-learning package for parents whose child has been diagnosed with Downs Syndrome? ‘This e-learning package is designed to empower parents who have a child […]
06/01/17 - Paediatric Critical Care and Paediatric Specialised Surgery Service Review
CHF has taken part in this week’s Paediatric Critical Care and Paediatric Specialised Surgery Third Sector and Patient/ Parent Groups Webinar. The webinar on 05 January 2017 was a platform to update participants on early thinking for the Paediatric Critical Care and Paediatric Specialised Surgery Service Review. The Chair was Dr Peter Wilson, Clinical Lead, […]
04/01/17 - Happy New Year from CHF!
A first ‘Hello!’ of a fantastic new year and week! And CHF are more than motivated to ensure 2017 is a year of walking that extra mile with our heart children and families! You may already know that CHF provides information materials on congenital heart disease (CHD) including Factsheets that are free to download; […]
20/12/16 - Christmas 2016 & New Year 2017!
The Children’s Heart Federation office will be closed for Christmas from 21st December 2016. The office will open again on 4th January 2017. If you require any information regarding congenital heart disease over the Christmas and New Year break please email info@chfed.org.uk Wishing you a Merry Christmas and a Happy New Year from the Children’s […]
19/12/16 - A special CHF Thank You through Christmas & New Year
It’s the season for giving and CHF would like to give a biggest ‘Thank You’ to all our heart children and families for inspiring us throughout the past months of 2016 and continuing to do so into a brand new year to be! CHF also say a massive ‘Thank You’ to our amazing fundraisers and […]
17/12/16 - An invitation to get involved in NHS England’s review into paediatric critical care and specialised surgery
NHS England is leading a national review into paediatric critical care and specialised surgery. The aim of the review is to ensure that services are sustainable for the future and that they deliver high quality, fair and equal care to children and families, as close to home as possible. NHS England is keen to test […]
12/12/16 - Special needs support for heart children
CHF focus this week on our heart children’s special needs within a school setting which may include physical and learning challenges. CHF has a Factsheet on: ‘Your Child and Special Educational Needs’ that is free to access and download. Please share a challenge in a school setting that’s been overcome with your heart child and […]
01/12/16 - Transition support for young people with congenital heart disease (CHD)
Are you a young person who will soon transition to receiving support from an adult multidisciplinary team with congenital heart disease (CHD) specialism? Please share with CHF about what has worked well for you and what you would like to see improved — literally. Your here & now reality, experience & views of CHD are […]
05/12/16 - Support for all those affected by a sudden young cardiac death
CHF member group Cardiac Risk in the Young (CRY) offers emotional support to bereaved family and friends following a sudden young cardiac death. Please know that CRY’s network of volunteers are trained in a British Association of Counselling (BAC) accredited course so that they can fully support those who have been bereaved by a sudden […]
Nov 30th 2016 - CHF’s new fathers’ points of view request on CHD & family support
An international research study noted in the Karolinska Institutet has focused on new fathers’ concerns including: money upbringing the health of their child. CHF would like to hear from our new fathers on their views too. Please share your experiences via info@chfed.org.uk or via our Facebook page. We’d like to start a conversation on this […]
