News
19/06/17 - NHS Congenital Heart Disease Consultation
The NHS Congenital Heart Disease (CHD) Consultation has scheduled meetings for the following dates: 19 June 2017 Bristol Royal Infirmary 22 June 2017 Lincolnshire New Life Centre Sleaford 24 June 2017 Royal Brompton Hospital 27 June 2017 Newcastle Civic Centre 27 June 2017 Leicester City Council 28 June 2017 Middlesbrough St […]
16/06/17 - Changes to Adult Congenital Heart Disease Services in the North West
Important Information: 16 June 2017 ‘NHS England is currently conducting a national public consultation on how it will put in place new standards for hospitals providing congenital heart disease services in England. It follows the publication in 2015 of a new set of quality standards for all hospitals providing congenital heart disease services covering both […]
Jun 08th 2017 - Email up and running
We are pleased to report that we now have normal email access. Please contact us at info@chfed.org.uk if you require information or assistance.
22/05/17 - Covering every aspect of the CHD journey
‘Ask Me Anything’ is the new app in development that is currently being created by young adults from CHF partner group Evelina Children’s Heart Organisation (ECHO) together with an app developer to improve transition from children’s to adults’ congenital heart disease (CHD) services. Designer Emily explains more: “The website and app will enable young people […]
19/05/17 - Faulty defibrillator: users urged to check battery connection
People and organisations should check public access defibrillators for a technical fault, the Medicines and Healthcare products Regulatory Agency advised today. People and organisations should check if they have the defibrillator model, LIFEPAK 1000 Automatic External Defibrillators (AED), because a technical fault with some of them means they may not deliver an electric shock to […]
10/05/17 - Resilience and congenital heart disease (CHD)
Congenital heart disease (CHD) resilience comes in many shapes and forms. Talking, reading and sharing information about it are the elements that hold it together. CHF’s Molly’s dollies choose: ‘Rosie goes red, Violet goes blue’ as their CHF book and narrative to share this important information. Would you like to introduce this CHD book to […]
04/05/17 - CHF’s Heart2Heart: Your CHD e-newsletter
A new month and a new look Heart2Heart e-newsletter! Read and share – we’d love to receive your feedback! Email us at: info@chfed.org.uk or via Facebook www.facebook.com/chfed Or Twitter @chfed Let’s make 2017 the most shared in the congenital heart disease (CHD) family! Further information: http://ymlp.com/zPUdBW
28/04/17 - CHD Consultation
Please note that the congenital heart disease (CHD) consultation by NHS England will now progress until: 17 July 2017 Further information: https://www.england.nhs.uk/blog/extending-the-congenital-heart-disease-consultation/
27/04/17 - Talking about CHD
Sharing information about disability with your heart child and siblings may be a positive way of growing in emotional resilience for each heart family and friends on their congenital heart disease (CHD) journey together. CHF’s Molly’s dollies offer a gentle and secure way of talking about the subject of CHD heart surgery scars and some […]
04/04/17 - Public Health England e-learning screening education
Public Health England has opened a new e-learning platform on screening information and education. All who would like to learn more about PHE screening are invited to register for this innovative new e-learning website. PHE Screening leads the national population screening programmes, which are delivered by the NHS. These identify apparently healthy people who may […]
