News
06/11/17 - PICU and Specialist Surgery Services Users’ Views
NHS England are seeking service users views on Paediatric Intensive Care Units (PICU) and Specialist Surgery services for children, as part of their national service review. There will be a webinar on 06 December 2017 at 11.00 that is dedicated to parents, carers and the third sector. If parents and carers would like to join the […]
30/10/17 - A new element to CHF’s Heart2Heart
CHF’s Heart2Heart e-newsletter is a regular e-news briefing covering subjects such as research and development in congenital heart disease; information and policy; and CHF and partner groups’ home news and key events. Look out for our forthcoming Heart2Heart: Comment. A new part of CHF’s current Heart2Heart format. Concise, new and inviting CHD conversation. Further information: […]
Nov 09th 2017 - 18 October – Pulse oximetry testing message taken to Parliament
A team from CHF including Beatty Bear visited Portcullis House, Westminster to campaign for pulse oximetry testing of all newborns. The test which monitors oxygen levels can pick up potential heart conditions that have not been found during scans in pregnancy. Early recognition of heart conditions can greatly improve the outcome for the child, reduce […]
24/10/17 - Safe in School & CHF’s CHD campaigns
Watch this space for updates on CHF’s recent Safe in School event at Parliament. We’d like to say a very big thank you to our heart children and parents for their outstanding information exchange with their MPs. Nothing speaks louder than a heart child’s and parents’ voice. Now we’re continuing our journey together with our […]
23/10/17 - CHF & Safe in School event at Parliament today
Today, the Children’s Heart Federation (CHF) together with over 30 groups from the Health Conditions in Schools Alliance join parents; carers; and children with health conditions in a dynamic information exchange with MPs and researchers for the Safe in School event at Parliament. This event is a great way for parents and children to share […]
19/10/17 - Safe in School event at Parliament
CHF’s keeping the positive momentum of our recently held successful Parliamentary Day and look forward to engaging directly with MPs again at Parliament on Monday 23 October 2017 at the Safe in School event. A member of the Health Conditions in Schools Alliance, CHF will be participating on this day, together with parents; volunteers and children […]
19/10/17 - Cardiomyopathy in children & young adults
If your child or young adult has recently been diagnosed with cardiomyopathy, please know that CHF partner group Cardiomyopathy UK has a booklet about cardiomyopathy in children and young people. Further information: http://www.cardiomyopathy.org/family-carers/cardiomyopathy-in-children
17/10/17 - CHF is taking CHD campaigns to Parliament
CHF is going to the Houses of Parliament to promote CHF’s pulse oximetry and Think HEART campaign on Wednesday 18 October. CHF is campaigning for the introduction of pulse oximetry screening for all newborn babies in the UK. The pulse oximetry test measures the oxygen levels in the blood and is proven to be effective […]
16/10/17 - Restart a Heart Day 2017
Restart a Heart Day 2017 takes place on Monday 16 October with the aim of teaching life-saving cardiopulmonary resuscitation (CPR) skills to as many people as possible. This event will see the St John Ambulance; Yorkshire Ambulance Service; British Heart Foundation; and British Red Cross train as many children and young people as possible to […]
09/10/17 - Constant inspiration: CHF’s heart children & families
From signposting international enquiries to congenital heart disease (CHD) resources as well as ensuring the heart child’s and their parents & carer’s voices can be heard at the centre of the CHD narrative in the UK and globally. Find out how CHF maintain a strong signal in communicating CHD research developments and one-to-one support. More […]
