News
Apr 26th 2018 - 11th May Write to your MP about pulse oximetry testing
CHF has been campaigning for the introduction of Pulse Oximetry screening for all newborn babies in the UK since 2015. The test – measuring the oxygen levels in the blood – is proven to be effective in detecting three quarters of congenital heart conditions. We’re leading this campaign and pushing for its inclusion in the […]
23/04/18 - Experience of Care Week 2018
Experienced excellent care at your heart child’s hospital appointments? Why not share your feedback on great care or suggest what could have worked better? Experience of Care Week takes place on 23 – 27 April and addresses what is happening across health and social care to improve experiences of care for patients, carers and staff. […]
16/04/18 - Nutrition and congenital heart disease (CHD)
CHF are focusing on nutrition and support for children with congenital heart disease (CHD). Our campaigns page is hosting recipes from parents sharing their insights and recipes. And our Heart2Heart e-newsletter is providing food tips from a new CHD recipe book called: For babies who need to get the most out of every mouthful. More information […]
13/04/18 - Heart conditions & infective endocarditis
Children with heart conditions are more at risk of infective endocarditis. Infective endocarditis is a rare but life-threatening disease. It’s therefore very important for heart children to take good care of their teeth. Find out more from CHF’s information sheet: http://www.chfed.org.uk/how-we-help/information-service/caring-for-heart-children/your-childs-teeth/
12/04/18 - NICE & school based interventions
The National Institute for Health and Care Excellence (NICE) is currently looking for people to join the committee developing a quality standard on school based interventions to improve wellbeing. NICE would particularly welcome applications from: young people (18 years and older) parents and carers of children under 13 years old. Further information: https://www.nice.org.uk/get-involved/our-committees/join-a-committee/lay-member-qsac-for-school-based-interventions
10/04/18 - The profoundest gift
‘For the first year ever, more than 1,500 people in the UK have donated their organs after they died and this means that more people than ever have had a transplant to transform their life.’ Read about Alex’s story: https://www.nhsbt.nhs.uk/how-we-help/saving-lives/patient-and-donor-stories/alexs-story/ Find out more about the NHS Organ Donor Register at https://www.organdonation.nhs.uk/
09/04/18 - CHF’s most viewed information resource
Find out more about CHF’s most viewed information resource which is our information sheet about Tetralogy of Fallot. Further information: http://www.chfed.org.uk/how-we-help/information-service/heart-conditions/tetralogy-of-fallot-fallots-tetralogy/ More details about CHF’s series of information sheets focusing on heart conditions: http://www.chfed.org.uk/how-we-help/information-service/heart-conditions/ More details about CHF’s series of information sheets focusing on caring for a heart child: http://www.chfed.org.uk/how-we-help/information-service/caring-for-heart-children/
Mar 26th 2018 - Rewarding school attendance – what do you think?
Should children be rewarded for school attendance or does it discriminate against children with health conditions? Let us know how you feel about this by completing this facebook poll.
26/03/18 - Health conditions in schools support
CHF is part of the Health Conditions in Schools Alliance and we’re continuing our work alongside alliance groups for 3 key changes: The changes we need We want to see three simple changes that would make a big difference for all children in school in England living with a medical condition. We want Ofsted to […]
23/03/18 - Pyjamas that bring comfort to children
Is your child or a friend’s baby waiting for a hospital stay or medical procedure? Find out more about a charity that brings comfort and support to young patients and their families in hospitals in the UK. Offering free pyjamas and surgical gowns that are made in beautiful and bright fabrics especially chosen for each […]
