News
14/12/15 - Bereavement Booklet – Cardiac Risk in the Young
CHF member group Cardiac Risk in the Young (CRY) has launched a new bereavement booklet to help siblings and families get through the festive season. If you, your family or friends have been affected by a sudden young cardiac death, this booklet by CRY has been especially written to offer profound support and solace. Please […]
09/12/15 - Masterclass in exercise prescription for CHD
Are you a specialist nurse, physiotherapist or paediatric cardiologist? Would you like to attend a Masterclass in Exercise Prescription for CHD? Save the date! 28 – 29 January 2016 in Birmingham. This interactive and practical course will address the following areas: prescription in young adults and children risks of prescription exercise imaging practical application Course […]
08/12/15 - Barth Syndrome Research Call
Do you or a loved one have Barth Syndrome? Would you like to complete an on-line questionnaire about quality of life with Barth Syndrome? Dr John Lynn Jefferies from the Cincinnati Children’s Research Foundation is researching quality of life, anxiety and depression with Barth Syndrome. To see Dr Jefferies’ research request and to participate in […]
07/12/15 - All Party Parliamentary Group 8 December 2015
The next All Party Parliamentary Group Meeting will take place on: 8 December 2015 Max Appeal want to make sure that young people’s voices are heard! If you haven’t yet filled out the on-line questionnaire, you still have a chance to complete it today before tomorrow’s meeting. To access the on-line questionnaire and more information please […]
04/12/15 - ECHO Teen Club (ETC)
ECHO Teen Club (ETC) is an exciting group created for and by children and young people with a heart condition. If you are a person who has a heart condition and are treated at the Evelina Children’s Hospital (ECH) or at one of the 16 local District General Hospital Outreach Clinics, you may be interested […]
03/12/15 - Accessing NHS-funded treatment abroad
NHS England is updating guidance for patients living in England who wish to access NHS-funded healthcare abroad. NHS England would like to design and co-produce a new leaflet with patients/carers and organisations supporting patients/carers. Would you like to join this group and participate in a webinar on 7 December 2015? The webinar will take place from 12:30 – 14:00 […]
30/11/15 - Christmas Pizza!
Come see Santa and his little helpers create the perfect pizza! Pizza with Elves will be taking place at the Hilton, Manchester Airport on: Sunday 20 December 2015 from 12:30. Children will have the chance to make their own pizza with Santa! And everyone will enjoy a fantastic 3 course Sunday lunch. More information from […]
24/11/15 - Cardiomyopathy Information Day
A FREE Cardiomyopathy UK Patient and Family Information Day will take place this weekend on: Saturday 28 November from 9.30am to 4.30pm at the Holiday Inn, Cardiff. Please come along and find out more about the latest treatments and research updates regarding cardiomyopathy. Attendance is FREE but if you would like to stay for lunch, […]
20/11/15 - Atrial Fibrillation Aware Week
23 – 29 November 2015 One in four people will develop AF; it affects an estimated 1.5 million across the UK and in excess of 16 million worldwide. Every 15 seconds someone suffers an AF-related stroke. AF is the most powerful single risk factor for suffering a deadly or debilitating stroke. AF can be detected […]
19/11/15 - Universal Children’s Day – 20 November 2015
“The one thing all children have in common is their rights. Every child has the right to survive and thrive, to be educated, to be free from violence and abuse, to participate and to be heard. “ Secretary-General Ban Ki-moon Marking the day when the UN Assembly adopted the Declaration of the Rights of the […]
