News
22/02/16 - Cardiology 2016 Conference
The Children’s Heart Federation’s (CHF’s) congential heart defects awareness message is travelling stateside this week! CHF’s informational materials will be represented at the Cardiology 2016 Conference in Florida! This year’s conference focus is: Bringing Science to Clinical Practice. Attendees will receive updates on cutting-edge science and clinical management strategies in paediatric and congenital cardiovascular medicine […]
19/02/16 - Genetic test to detect inherited heart conditions
Researchers have developed a genetic test to detect inherited heart conditions by looking at 174 genes. The new blood test and its research findings have been published via Open Access and can be downloaded for free from the Journal of Cardiovascular Translational Research. ‘Development of a comprehensive sequencing assay for inherited cardiac condition genes’ may […]
15/02/16 - Magnifying the message on CHD
CHF’s Molly’s dollies are determined to keep the focus fully on CHD awareness! Did you know that you can download CHF’s CHD Factsheets for free from our website? Our Factsheets are clearly written and are visually comprehensive so that the message about congenital heart defects (CHD) can be shared extensively with CHD children and families […]
08/02/16 - CHD Awareness Week
Congenital Heart Defects (CHD) Awareness Week takes place on: Sunday 7 – Sunday 14 February 2016! Come and join CHF in raising awareness of CHD! CHF are also inviting you to participate in: You, Me, Help CHD! CHF’s CHD awareness weeks are running right up to Easter 2016! Please see information below: http://www.chfed.org.uk/you-me-help-chd/ We look […]
01/02/16 - CHF campaign for CHD & pulse oximetry testing
CHF’s Chief Executive, Anne Keatley-Clarke is calling for ‘… all babies to be tested for heart conditions at birth to help save lives. CHF is also calling for the introduction of pulse oximetry testing on all newborn babies’. CHF is campaigning for the introduction of pulse oximetry screening for all newborn babies in the UK. […]
29/01/16 - Photos of You, Me, Help CHD!
Please send in your photos of You, Me, Help CHD! to info@chfed.org.uk or via Facebook! We’d love to see your baking cookies photos and all those fantastic teddy and toys tea party photos too! And we also look forward to see some amazing knitting photos for all those Molly’s Dolly Beanie hats and newborn hats too! […]
28/01/16 - You, Me, Help CHD!
The Children’s Heart Federation (CHF) is launching You, Me, Help CHD! If you like to fundraise by baking scrummy heart shaped cookies and holding an exciting teddy and toys tea party, here’s a fantastic recipe that Denise Kortlever, a cook-book author has kindly given permission for CHF to use: http://tlt-thelittlethings.com/2013/02/03/heart-shaped-cookies/ Please ask mum and dad […]
21/01/16 - Atrial septal defects research study
Has your child being diagnosed with Atrial Septal Defect Secundum (ASD II)? Would you like to take part in an half hour telephone call and be part of a research project that is looking at treatment pathways for ASD II? Thomas Schaldecker is a student of medicine and health economics at Heidelberg University and is […]
20/01/16 - Cardiomyopathy Information Days
Families with a young child or young person diagnosed with cardiomyopathy may find these forthcoming FREE Cardiomyopathy Information Days of use as they offer an opportunity to ask all the questions that have been reeling around in our mind. A child’s experience of cardiomyopathy will depend on the ‘type of cardiomyopathy, symptoms, severity of disease, […]
15/01/16 - APPG on Heart Disease
The All Party Parliamentary Group on Heart Disease will be meeting on: 19 January 2016 At: Macmillan Room, Portcullis House From: 15:00 – 16:30 Please contact your MP and ask them to come along and visit CHF’s stand. The more MPs that hear and act on our CHD information campaign, the better we serve our CHD […]
