Do you or a loved one have Barth Syndrome?
Would you like to complete an on-line questionnaire about quality of life with Barth Syndrome?
Dr John Lynn Jefferies from the Cincinnati Children’s Research Foundation is researching quality of life, anxiety and depression with Barth Syndrome.
To see Dr Jefferies’ research request and to participate in an on-line questionnaire please see more at:
This is an opportunity to help Barth Syndrome research.
Please share your voice and your views – they will be greatly valued.