News
01/12/16 - Transition support for young people with congenital heart disease (CHD)
Are you a young person who will soon transition to receiving support from an adult multidisciplinary team with congenital heart disease (CHD) specialism? Please share with CHF about what has worked well for you and what you would like to see improved — literally. Your here & now reality, experience & views of CHD are […]
05/12/16 - Support for all those affected by a sudden young cardiac death
CHF member group Cardiac Risk in the Young (CRY) offers emotional support to bereaved family and friends following a sudden young cardiac death. Please know that CRY’s network of volunteers are trained in a British Association of Counselling (BAC) accredited course so that they can fully support those who have been bereaved by a sudden […]
Nov 30th 2016 - CHF’s new fathers’ points of view request on CHD & family support
An international research study noted in the Karolinska Institutet has focused on new fathers’ concerns including: money upbringing the health of their child. CHF would like to hear from our new fathers on their views too. Please share your experiences via info@chfed.org.uk or via our Facebook page. We’d like to start a conversation on this […]
24/11/16 - Congenital Heart Disease (CHD) & Disability Living Allowance (DLA) meeting at Parliament on 29 November 2016
Tuesday 29 November 2016 will bring together national children’s heart and adult congenital heart charities to a meeting in Parliament to obtain MPs’ support in getting children’s heart disease recognised in the Disability Living Allowance Assessor Pack. We need your help to get as many MPs to attend the meeting as possible. The event will […]
21/11/16 - CHF’s Christmas Lights Challenge & CHD Awareness 2016
CHF launch our Christmas Lights Challenge! How long will it take our heart children and families to unravel the Christmas lights this year? CHF’s Molly’s dollies took a record 5 minutes! And they’ve taken this photo to prove it! Share your record time too and why not donate your minutes in pounds to CHF’s JustGiving […]
14/11/16 - CHD & DLA Awareness Event at Parliament on 29 November 2016
On Tuesday 29 November 2016 national children’s heart and adult congenital heart charities are holding a meeting in Parliament to obtain MPs’ support in getting children’s heart disease recognised in the Disability Living Allowance Assessor pack. We need your help to get as many MPs to attend the meeting as possible which will be hosted by: […]
31/10/16 - Cardiac conditions in the young
Are you a young person who has recently been diagnosed with a heart condition? CHF member group Cardiac Risk in the Young (CRY) has written an e-booklet called: Cardiac Conditions in the Young: From ARVC to WPW This downloadable booklet provides a clear explanation on medical terms and is specifically written for a newly diagnosed […]
24/10/16 - Communicating about cardiomyopathy
Are you a medical professional with patients presenting with cardiomyopathy? Please know that CHF member group Cardiomyopathy UK has a support network of affected volunteers who are willing to speak with newly diagnosed patients via the phone or email. Further information: http://www.cardiomyopathy.org/medical-professionals/mp
17/10/16 - British Congenital Cardiac Association (BCCA) AGM 2016
The Annual Meeting of the British Congenital Cardiac Association (BCCA) will take place on: 23 – 24 Nov 2016 at the East Midlands Conference Centre, Nottingham. Sessions will include: Ethical dilemmas in congenital heart disease (CHD) from fetus to adult; Advances in imaging; Preventing sudden death in the young. Further information: http://www.bcca2016.co.uk/
10/10/16 - Congenital heart disease and pacemakers
Hearing that your child may require a pacemaker may be an understandably challenging moment. And clear impartial information is vital for you all as a family. Please know that CHF has a free and downloadable factsheet on pacemakers. Information that you can share and return to. Further information: http://www.chfed.org.uk/how-we-help/information-service/caring-for-heart-children/if-your-child-needs-a-pacemaker/
