May 01st 2024 - CHF 100 meters a day in May challenge
Grab your goggles and dive on in! Join CHF on our Swim 100 Meters a day in May challenge! All children and young people benefit from being physically active, and swimming can be very good exercise for a child with heart conditions. Not sure about where to start, why not try a different swimming stroke […]
Apr 29th 2023 - Take part in the CHF 100 miles in May challenge
1 in 100 babies in the UK are born with a heart condition, between 500 – 1000 develop a heart conditions after they are born. Join CHF and run, walk, or skip to the beat by signing up, grabbing yourself a FREE CHF t shirt and walk up to 100 or as many miles as […]
Mar 28th 2023 - Lincoln’s Story
Told by his mother Tanya My youngest son has a complex Congenital Heart Defect (CHD) and Heterotaxy Syndrome RAI meaning he has misplaced organs and no spleen, basically he has a complex anatomy. We found out at the anatomy scan that there was something wrong with his heart. He had his first surgery at 4 […]
Oct 12nd 2022 - Event for parents and carers of children with heart conditions – Have your say!
We are planning in person activities for children with heart conditions and invite families and carers to join the CHF team for a focus group discussion. This will be a great opportunity to meet one another, share experiences and concerns as a group, and to help us ensure CHF continues to meet needs and concerns […]
Mar 31st 2022 - JCVI Update for children and COVID-19 vaccines
As the national booking service for COVID-19 vaccines opens for Spring booster appointments, the NHS has made it easier for people with a weakened immune system to get the vaccinations they need. Children aged 5 to 11 at high risk The Joint Committee on Vaccination and Immunisation (JCVI) advises recommends that 5 to 11-year-olds who […]
Feb 21st 2022 - Coffee & Questions – Medicines for heart children
Our next Coffee & Questions will take place on Wednesday 2nd March 2022. Dr Abbas Khushnood, consultant in paediatric & congenital cardiology, will be answering your questions about medicines for children with heart conditions. Dr Abbas Khushnood was appointed as Consultant Paediatric Cardiologist at the Freeman Hospital, Newcastle in 2018. He has been the Network […]
Jan 19th 2022 - CHF Research Projects – tell us what you think about long term medicines for children
Through our work we have learned that there can be practical and emotional issues, as well as some positive experiences, that parents/carers encounter when giving long term medicines to children. We have therefore decided to support the running of a survey aimed at parents/carers of children on long term medicines designed to help us understand your […]
Dec 15th 2021 - BCCA News Update 14th December 2021 – Covid–19 Vaccination for children and young people
Covid–19 Vaccination for children and young people On 26 November 2021 WHO designated the COVID variant B.1.1.529 a “variant of concern”, named Omicron (WHO update on omicron 28 Nov 2021). In response to the emergence of this variant the JCVI has expedited and reviewed its advice for the UK vaccine response (JCVI advice for omicron 29 […]
Oct 27th 2021 - Updated BCCA Statement on COVID Vaccinations for Children and Young People
COVID19 Vaccination for children and young people The Pfizer/BioNTech vaccine was approved for use in children aged 12-15 years by the Medicines and Healthcare products Regulatory Agency (MHRA) on June 4th 2021. The Joint Committee for Vaccination and Immunisation (JCVI) recommended two doses of COVID-19 vaccine (Pfizer/BioNTech) for children between 12 and 18 years and either […]
