Feb 06th 2024 - Sam’s Story
told by mum Samuel was born at full term after an uneventful pregnancy. We had had a quick discharge from hospital, so our GP visited us at home the following day and a full newborn examination did not reveal anything unusual. Samuel was very quiet, rarely cried and slept beautifully. My only complaint with […]
Feb 05th 2024 - Charlie’s Story
told by Charlie Hi! I’m Charlie and I have Focal Atrial Tachycardia, a defect in my heart’s electrical system causing an irregular heartbeat. Untreated, my heart goes out of rhythm multiple times a day. It’s a very annoying (benign) condition. Having a quirky heart meant I learnt to work with my body. Professionally, I’ve […]
Feb 04th 2024 - Kodi’s Story
told by mum Lynsay At 12 weeks of pregnancy I was told that the baby was very poorly and the fluid around the baby was too much and was pressing down on the baby’s chest and head, the hospital was advising me to terminate the pregnancy as by the time I got to the […]
Feb 03rd 2024 - Mary’s Story
told by mum Elizabeth Before having a child with a hole in the heart, I never imagined the knock-on effects. Who would have thought that it would result in feeding her through a naso-gastric tube or that it might cause extreme reflux and, as a result, it took two people over an hour to […]
Feb 02nd 2024 - Jaxon’s Story
told by his mum Amanda Jaxon is about to turn 7 next month on the 2nd of February, he was born with Ebsteins anomaly, we didn’t know until he was 6 hours old. At 4 days old Jaxon went into multi organ failure and he was given 24 hours to live. We were lucky […]
Feb 01st 2024 - Lilygrace’s Story
told by mum At my 20 week scan, I was told by the sonographer that there was something wrong with my baby’s heart and we had to go back for further scans by cardiology and fetal medicine. They confirmed that my baby has the very rare Heterotaxy syndrome right atrial isomerism (two right atria, […]
Sep 25th 2023 - Team Let’s Get Fiscal take on the CHF Inflatable 5k
We would like to send a thank you to Team Let’s Get Fiscal from Dexter & Sharpe Accountants on their fantastic achievement on recently completing one of our new fundraising events, the Inflatable 5k in aid of CHF and amazingly surpassing their fundraising target! […]
Aug 21st 2023 - Victoria Saddington Tipping
Victoria and her husband decided to fundraise and raise awareness for CHF by taking on the Snowdonia Weekend with Discover Adventure 2023! Being a personal cause to Victoria, as she was born with a Heart Defect, a VSD/Hole in the Heart, this will never heal. “For me, the hole is central in my heart and […]
Sep 11st 2023 - BeWILDerwood Norfolk Activity Day 2023
CHF is excited to invite children with heart conditions* and their families to a fun day** of outdoor and creative activities at BeWILDerwood, Norfolk Wednesday 25th October 2023! The whole family can spend the day running, whizzing and clambering on the sustainable wooden play structures, from aerial ropewalks to climbing walls, balancing logs and muddled […]
Aug 05th 2023 - Fundraise for CHF with the Inflatable 5K
Take part in an Inflatable 5K event to raise money for CHF’s new Exercise Programme The Inflatable 5K events are just the first steps you can take toward supporting and fundraising for the new CHF Exercise Programme. The world’s largest and best fun run obstacle course the ‘Inflatable 5K’ has got even bigger and bouncier […]
