Mary's Story

told by mum Elizabeth


Before having a child with a hole in the heart, I never imagined the knock-on effects. Who would have thought that it would result in feeding her through a naso-gastric tube or that it might cause extreme reflux and, as a result, it took two people over an hour to feed her, every three hours, for a year? The regime entirely took over our lives. Amazingly, heart surgery fixed the reflux, but we still had to train a child, now with an oral aversion, to eat through her mouth. An epic journey, but with stellar support from the NHS nutritionist, we made it.


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