told by mum Elizabeth

Before having a child with a hole in the heart, I never imagined the knock-on effects. Who would have thought that it would result in feeding her through a naso-gastric tube or that it might cause extreme reflux and, as a result, it took two people over an hour to feed her, every three hours, for a year? The regime entirely took over our lives. Amazingly, heart surgery fixed the reflux, but we still had to train a child, now with an oral aversion, to eat through her mouth. An epic journey, but with stellar support from the NHS nutritionist, we made it.

If you have been affected by any of the issues raised in this content you can contact info@chfed.org.uk or 0300 561 0065.