Jun 07th 2022 - Ava’s transplant story
Ava grew up with Dom who was born with a serious heart condition which eventually led to him having a heart transplant. Eight-year old Ava was inspired to write this fantastic story during her school holidays. Transplant Hello my name is Ava and I’m writing this book for children who have heart conditions. Characters Cyan […]
Jun 07th 2022 - CHF – children’s story competition rules
The rules are simple. The story must be written by a child 14 years or younger. The story must be about or include a child with a heart condition. Deadline for entries is extended to 26th August 2022. Winners will receive a prize goodie bag from CHF. Please email entries to info@chfed.org.uk with Children’s story […]
May 25th 2022 - Dominic’s story – told by Dominic
Dominic Davies aged 21 tells the story of his heart condition, his heart transplant and why he supports the law change relating to organ donation Hearing that there’s something very wrong with your baby’s heart must be terrifying. That’s what my mum was told at her routine scan when she was 20 weeks pregnant with […]
May 19th 2022 - Lilly’s story
Lilly’s story told by her mother Kirsty Lilly’s heart was stable when she was born so was born in September 2020 and she was discharged by the Friday of that same week. Lilly has a very rare heart condition called dextrocardia where the heart is on the right hand side of the chest rather than […]
May 18th 2022 - New study on the benefits of exercise for children with single-ventricle heart conditions
A new study in Australia and New Zealand is investigating the benefits of exercise for children with single-ventricle heart conditions. The research is being conducted by cardiologist Associate Professor Rachael Cordina. “Emerging research is now suggesting that exercising is even more important than in the general population for people with the most complex types of […]
May 17th 2012 - Think HEART Campaign
The Children’s Heart Federation launched a new national information campaign directed towards parents and medical professionals. The Think HEART campaign aims to empower and inform parents, as well as better educate medical professionals about the key early signs of a possible heart problem in children. There are five easy to spot signs to help parents […]
Aug 16th 2012 - Pulse oximetry Campaign
CHF continues to campaign for routine pulse oximetry screening for critical heart defects in newborn babies. Pulse oximetry screening is a safe, painless and simple test that has been shown, in research studies involving almost half a million babies, to identify consistently babies with life-threatening heart defects (critical congenital heart defects or CCHD) before they […]
Oct 17th 2012 - INR self-monitoring Campaign
The campaign for the provision of INR machines continues, if you would like to be involved or support the campaign email info@chfed.org.uk. Background Warfarin is an anticoagulant (blood thinner). It is used to stop the blood from clotting too easily. It also prevents harmful clots from forming and getting bigger in the blood. If blood […]
Apr 26th 2022 - Tell your MP to #SENDABetterMessage
Some but not all children with heart conditions are disabled, but please join CHF in supporting the Disabled Children’s Partnership to help create a fairer support system for all disabled children and their families. The Disabled Children’s Partnership (DCP) is calling on the government to use its SEND reform programme to create a more just, […]
Nov 03rd 2021 - Knitters needed
The Molly’s Dollies look great in their colourful jumpers but there is a serious reason behind the reason we provide them. The V neck jumpers show the majority of dolls’ scars so children can see the scar and show it to their family and friends […]
