Aug 05th 2023 - Fundraise for CHF with the Inflatable 5K
Take part in an Inflatable 5K event to raise money for CHF’s new Exercise Programme The Inflatable 5K events are just the first steps you can take toward supporting and fundraising for the new CHF Exercise Programme. The world’s largest and best fun run obstacle course the ‘Inflatable 5K’ has got even bigger and bouncier […]
Mar 28th 2023 - Family day at Whitemoor Lakes May 20th 2023
Do you know a child with a heart condition who loves adventure and challenges? Then they are invited to attend the CHF activity day on May 20th at Whitemoor Lakes, near Lichfield and can bring along the whole family, (two adult parent or carers plus siblings). There will be a range of […]
Feb 08th 2023 - CHF are recruiting for three new steering groups
Help CHF and children with heart conditions nationwide by sharing your experience in one of our steering groups. CHF are aiming to recruit for three new steering groups that will advise on issues relating to children with congenital or acquired heart conditions through lived and professional experience. We want to hear from: Young people with […]
Jun 22nd 2022 - NCHDA summary report
This important publication is of interest to anyone concerned about children with congenital heart disease. The National Congenital Heart Disease Audit collects and analyses data from all congenital cardiac centres that undertook surgery, interventional procedures (including electrophysiology) and antenatal detection in the UK and Republic of Ireland between 2018 to 2021. The complete summary report […]
May 25th 2022 - Dominic’s story – told by Dominic
Dominic Davies aged 21 tells the story of his heart condition, his heart transplant and why he supports the law change relating to organ donation Hearing that there’s something very wrong with your baby’s heart must be terrifying. That’s what my mum was told at her routine scan when she was 20 weeks pregnant with […]
Oct 05th 2021 - SHARE Study – Impact of COVID19 on the lives of children with heart conditions
How has COVID19 impacted the lives of children with heart conditions and their families? The SHARE study is looking at the impact COVID19 has had on participants lives regarding physical (exercise, eating, sleeping) and emotional (anxiety and mood) wellbeing as well as distress experienced. The survey includes two open ended questions on reflections on positive […]
Jun 23rd 2021 - Heart siblings impact study
Lizzie Bichard a cardiac nurse and one of the speakers at a recent CHF Coffee and Questions evening is conducting a study on the impact having a child with a heart condition can have on their siblings. This is part of her Phd, Lizzie interviewed some heart siblings last year, this is a continuation of […]
Feb 22nd 2021 - World-first paediatric heart transplant technique boosts number of life-saving operations for children in the UK
Using a technique that ‘reanimates’ the heart outside of the body, Great Ormond Street Hospital, Royal Papworth Hospital and NHS Blood & Transplant expand the donor pool and perform six paediatric heart transplants in 2020 Great Ormond Street Hospital (GOSH) and Royal Papworth Hospital (RPH) have collaborated to introduce a world-first paediatric heart transplant technique […]
Aug 13rd 2020 - Can you help us improve the quality of services for congenital heart disease?
The Children’s Heart Federation are involved in a new study called CHAMPION to try to improve how the quality of services for congenital heart disease (CHD) is measured and reported in England. We want to hear your views on what makes services good quality, which includes understanding how COVID-19 has affected your experience of health […]
Jul 21st 2020 - Miley’s story
Told by her mother Natalie We had been waiting for the birth of our daughter Miley for years. We had fertility treatment to help conceive her and we were so excited to meet her. I had no complications in my pregnancy and we were told at the scans that the baby was healthy. However, at […]
