News

24-26 Apr 2015

28/04/15 - CHF500 Dunlop 24hr

Revving up to Raise Awareness and Money Welcome to Team CHF500 our brand new fundraising venture in the supercharged world of motorsport! Following the generous ‘donation’ of a complete endurance race team, we ran a Porsche 968 in the Dunlop 24hr, at the world-famous Silverstone Race Track. This is a charity team, all proceeds and […]

22 July 2015

22/07/15 - Statement urging a swift response into implementation of congenital heart standards

News statement: 22 July 2015 Children’s heart charity urges swift implementation of congenital heart standards warning of unstable heart services for children The Children’s Heart Federation hopes that the new congenital heart care standards and service specifications will be agreed by the NHS England Board tomorrow (23 July 2015).  The new standards have been recognised […]

21 July 2015

21/07/15 - Tips when running for a charity!

Running for Charity… Paul Willgoss   Keen runner and hiker, and CHF trustee, Paul Willgoss, gives 6 tips on running for a charity.    A couple of people have asked for my tips and tricks for running for charity in the last couple of weeks, so I thought I’d write a summary of my sage […]

15 Aug 2015

14/07/15 - Review of Children’s Cardiac Services Bristol

The Independent Review of Children’s Cardiac services in Bristol held two events on 15th August, giving young people a chance to share their views and experiences of any aspects of their treatment. The sessions were held on Saturday 15th August at the Bristol science and discovery centre, At-Bristol. There was a morning session from 11am-1.30pm […]

18 July 2015

24/07/15 - Beale Park Summer Family Day

CHF held their summer family day for families in the South on the 18th July at Beale Park in Berkshire. What was on offer at Beale Park: An open wildlife park with a brilliant array of exotic animals from meerkats and lemurs to capybaras and owls and much, much more The bright red, 4 carriage, Beale Railway and an […]

30 June 2015

11/06/15 - Parents Wanted: Help Improve the Communication of Surgery Outcomes for Heart Children

Are you a heart parent and would like to help us improve communicating surgery outcomes of heart children? We need to hear your ideas on how best to represent a website and it’s contents. When? Tuesday 30th June from 2:00 – 3:30pm Where? Central London *** Compensation for standard travel expenses will be provided, plus […]

8 July 2015

18/05/15 - Introduction to Congenital Heart Disease Course Week for London Congenital Heart Centres

An annual course for Nurses and Allied Health Practitioners working with infants, Children and Young People who have Congenital Heart Disease and related Cardiac Conditions. The event was on Wednesday 8th July and took place at UCL’s Institute of Child Health. The course is run collaboratively by the practice educators and specialist staff of the London […]

28 Jun 2015

26/05/15 - Gypsy Traveller Summer Fair

Did you celebrate Gypsy Roma Traveller history month in style? The Gypsy Traveller Summer Fair was held in Mile End park on Sunday 28th June from 12pm-6pm. The fair included a small market with stalls, entertainment for the children, pony rides and live music. We  had our own stall that day. www.travellermovement.org.uk

3 Jun 2015

26/05/15 - London Parliamentary Event – Hosted by Mr Glyn Davies MP

Arrhythmia Alliance held a London Parliamentary Event on Wednesday 3rd June hosted by Mr Glyn Davies MP. At the event Arrhythmia Alliance launched a report to tackle the disparity in accessing lifesaving Automated External Defibrillators (AEDs) across the UK. The event ran from 12.15pm-3pm and was held in The Terrace Room in the House of […]

23 May 2015

18/05/15 - Yorkhill Transition Day

The cardiac nurses from Yorkhill Children’s Hospital and The Golden Jubilee National Hospital held a Transition Information Day for Congenital Heart Disease, On Saturday 23rd May 2015 at the Golden Jubilee National Hospital.  

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