News

25 Jan 2016

13/01/16 - Management of Heart Failure in Primary Care

A conference addressing the ‘Management of Heart Failure in Primary Care’ will take place in Birmingham on: 25 – 28 January 2016  Please note last bookings will need to be made by: 22 January 2016. This course is suitable for nurses, health care professionals and doctors within primary and community care. It’s learning outcomes include […]

15 Jan 2016

06/01/16 - Communicating surgery outcomes

Are you a heart parent and would like to help improve communicating surgery outcomes of heart children? Academics from University College London and University of Cambridge are working with the charity Sense about Science to build a website to help people make sense of children’s heart surgery outcomes that the UK national audit body publish […]

8 Jan 2016

01/01/16 - CHF’s call to action in 2016

CHF wishes you all a very HAPPY NEW YEAR! We’re looking forward to making every day count in terms of CHD policy and research in 2016! Join our call to action to: Think CHD Think HEART Think Action! CHF’s Think HEART campaign aims to empower and inform parents as well as educate medical professionals about […]

31 Dec 2015

22/12/15 - Christmas & New Year

CHF hopes all our wonderful CHD children and families have had a wonderful Christmas; are still enjoying the Christmas holidays and are now looking forward to starting a soon to be New Year 2016! Please know that should you have any general enquiries you are welcome to continue contacting CHF via email over the Christmas […]

26 Dec 2015

21/12/15 - New Peter Pan

‘Peter and Wendy’, a new version of J.M Barrie’s ‘Peter Pan’ will be shown on Boxing Day on ITV. Zac Sutcliffe and Hazel Doupe are the two exciting young talents that will be starring as Peter Pan and Wendy Darling. And Wendy in this version will be a 12 year old recovering from a heart […]

25 Dec 2015

18/12/15 - BIG thank you APC Cardiovascular!

APC Cardiovascular, a leading supplier of innovative medical products and equipment to the UK and international markets, are kindly donating to the Children’s Heart Federation (CHF) in lieu of sending Christmas cards. CHF says a massive THANK YOU to APC Cardiovascular! Your amazing Christmas spirit and kind hearted actions will help congenital heart disease (CHD) […]

21 Dec 2015

17/12/15 - Barth Syndrome Trust International

If you would like to find out more about Barth Syndrome, please know that the Barth Syndrome Trust has a network of international members. These include doctors and scientists as well as families and volunteers from all around the world. If you are seeking information or support, you are now welcome to access these in […]

18 Dec 2015

14/12/15 - Bereavement Booklet – Cardiac Risk in the Young

CHF member group Cardiac Risk in the Young (CRY) has launched a new bereavement booklet to help siblings and families get through the festive season. If you, your family or friends have been affected by a sudden young cardiac death, this booklet by CRY has been especially written to offer profound support and solace. Please […]

28 Jan 2016

09/12/15 - Masterclass in exercise prescription for CHD

Are you a specialist nurse, physiotherapist or paediatric cardiologist? Would you like to attend a Masterclass in Exercise Prescription for CHD? Save the date!  28 – 29 January 2016 in Birmingham. This interactive and practical course will address the following areas: prescription in young adults and children risks of prescription exercise imaging practical application Course […]

11 Dec 2015

08/12/15 - Barth Syndrome Research Call

Do you or a loved one have Barth Syndrome? Would you like to complete an on-line questionnaire about quality of life with Barth Syndrome? Dr John Lynn Jefferies from the Cincinnati Children’s Research Foundation is researching quality of life, anxiety and depression with Barth Syndrome. To see Dr Jefferies’ research request and to participate in […]

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