News
01/02/16 - CHF campaign for CHD & pulse oximetry testing
CHF’s Chief Executive, Anne Keatley-Clarke is calling for ‘… all babies to be tested for heart conditions at birth to help save lives. CHF is also calling for the introduction of pulse oximetry testing on all newborn babies’. CHF is campaigning for the introduction of pulse oximetry screening for all newborn babies in the UK. […]
29/01/16 - Photos of You, Me, Help CHD!
Please send in your photos of You, Me, Help CHD! to info@chfed.org.uk or via Facebook! We’d love to see your baking cookies photos and all those fantastic teddy and toys tea party photos too! And we also look forward to see some amazing knitting photos for all those Molly’s Dolly Beanie hats and newborn hats too! […]
28/01/16 - You, Me, Help CHD!
The Children’s Heart Federation (CHF) is launching You, Me, Help CHD! If you like to fundraise by baking scrummy heart shaped cookies and holding an exciting teddy and toys tea party, here’s a fantastic recipe that Denise Kortlever, a cook-book author has kindly given permission for CHF to use: http://tlt-thelittlethings.com/2013/02/03/heart-shaped-cookies/ Please ask mum and dad […]
21/01/16 - Atrial septal defects research study
Has your child being diagnosed with Atrial Septal Defect Secundum (ASD II)? Would you like to take part in an half hour telephone call and be part of a research project that is looking at treatment pathways for ASD II? Thomas Schaldecker is a student of medicine and health economics at Heidelberg University and is […]
20/01/16 - Cardiomyopathy Information Days
Families with a young child or young person diagnosed with cardiomyopathy may find these forthcoming FREE Cardiomyopathy Information Days of use as they offer an opportunity to ask all the questions that have been reeling around in our mind. A child’s experience of cardiomyopathy will depend on the ‘type of cardiomyopathy, symptoms, severity of disease, […]
15/01/16 - APPG on Heart Disease
The All Party Parliamentary Group on Heart Disease will be meeting on: 19 January 2016 At: Macmillan Room, Portcullis House From: 15:00 – 16:30 Please contact your MP and ask them to come along and visit CHF’s stand. The more MPs that hear and act on our CHD information campaign, the better we serve our CHD […]
13/01/16 - Management of Heart Failure in Primary Care
A conference addressing the ‘Management of Heart Failure in Primary Care’ will take place in Birmingham on: 25 – 28 January 2016 Please note last bookings will need to be made by: 22 January 2016. This course is suitable for nurses, health care professionals and doctors within primary and community care. It’s learning outcomes include […]
06/01/16 - Communicating surgery outcomes
Are you a heart parent and would like to help improve communicating surgery outcomes of heart children? Academics from University College London and University of Cambridge are working with the charity Sense about Science to build a website to help people make sense of children’s heart surgery outcomes that the UK national audit body publish […]
01/01/16 - CHF’s call to action in 2016
CHF wishes you all a very HAPPY NEW YEAR! We’re looking forward to making every day count in terms of CHD policy and research in 2016! Join our call to action to: Think CHD Think HEART Think Action! CHF’s Think HEART campaign aims to empower and inform parents as well as educate medical professionals about […]
22/12/15 - Christmas & New Year
CHF hopes all our wonderful CHD children and families have had a wonderful Christmas; are still enjoying the Christmas holidays and are now looking forward to starting a soon to be New Year 2016! Please know that should you have any general enquiries you are welcome to continue contacting CHF via email over the Christmas […]
