News
26/08/15 - Chatsworth Summer Family Day
CHF held their summer family day for families at the Chatsworth Estate on Saturday 22nd August. What was on offer at Chatsworth: Bush-craft skills at the newly built Stickyard education centre and use of the adventure playground Access to the world-famous Chatsworth House and Gardens A visit to the delightful Chatsworth farmyard, with lambs, horses and […]
26/08/15 - Pulse oximetry pilot under way
The newborn pulse oximetry screening pilot has begun The aims of the pilot are to: • understand the impact of implementing newborn pulse oximetry screening on NHS services • find out if it is feasible to roll out pulse oximetry nationally as an addition to the existing newborn and infant physical examination tests within 72 […]
19/08/15 - Update on Bristol Review
Since issuing a call for evidence last summer, a substantial number of families have contacted the Review and have helped to build up a detailed picture of experiences of the Children’s Cardiac Service at Bristol Children’s Hospital. In addition, evidence from the Trust and other organisations has enabled inquiry into the issues raised. The Review […]
17/08/15 - Response from CHF on the proposal for establishing a PREMS survey for Congenital Heart Disease
Children’s Heart Federation supports the development of PREMs (Patient Reported Experience Measures) and calls also for the development of PROMs (Patient Reported Outcome Measures) because we believe that together they form a useful tool for patients to provide direct feedback on their care to help drive improvement in services. We feel both are needed because […]
30/07/15 - NHS Maternity Review National Tour
The NHS Maternity Review wants to hear from you! Please come and share your views and experiences of maternity services and care. Over the next few months, the NHS Maternity Review will be hosting a number of drop in events around the country as part of its national tour to hear how women, their families […]
05/08/15 - NHS England PREMS Survey
NHS England were in the process of developing a PREMS Proposal in the hope of establishing a PREMS survey for Congenital Heart Disease. The national NHS survey programme includes a number of surveys designed to capture patient reported experience measures (PREMS). Within congenital heart disease services there is a real desire for PREMS to be developed and […]
20/07/15 - Wild Hearts Charity Clay Pigeon Shoot
The Wild Hearts Clay Pigeon Shoot was a glorious day. Thank you to all our wonderful and generous guests who made it a fantastic experience. The event was hosted by the Englefield Estate, the shoot run by the Royal Berkshire Shooting Group and catering provided by Andeva Gastronomy. A perfect package. Looking forward to next year already! See […]
28/04/15 - CHF500 Dunlop 24hr
Revving up to Raise Awareness and Money Welcome to Team CHF500 our brand new fundraising venture in the supercharged world of motorsport! Following the generous ‘donation’ of a complete endurance race team, we ran a Porsche 968 in the Dunlop 24hr, at the world-famous Silverstone Race Track. This is a charity team, all proceeds and […]
22/07/15 - Statement urging a swift response into implementation of congenital heart standards
News statement: 22 July 2015 Children’s heart charity urges swift implementation of congenital heart standards warning of unstable heart services for children The Children’s Heart Federation hopes that the new congenital heart care standards and service specifications will be agreed by the NHS England Board tomorrow (23 July 2015). The new standards have been recognised […]
21/07/15 - Tips when running for a charity!
Running for Charity… Paul Willgoss Keen runner and hiker, and CHF trustee, Paul Willgoss, gives 6 tips on running for a charity. A couple of people have asked for my tips and tricks for running for charity in the last couple of weeks, so I thought I’d write a summary of my sage […]
