News
21/12/15 - New Peter Pan
‘Peter and Wendy’, a new version of J.M Barrie’s ‘Peter Pan’ will be shown on Boxing Day on ITV. Zac Sutcliffe and Hazel Doupe are the two exciting young talents that will be starring as Peter Pan and Wendy Darling. And Wendy in this version will be a 12 year old recovering from a heart […]
18/12/15 - BIG thank you APC Cardiovascular!
APC Cardiovascular, a leading supplier of innovative medical products and equipment to the UK and international markets, are kindly donating to the Children’s Heart Federation (CHF) in lieu of sending Christmas cards. CHF says a massive THANK YOU to APC Cardiovascular! Your amazing Christmas spirit and kind hearted actions will help congenital heart disease (CHD) […]
17/12/15 - Barth Syndrome Trust International
If you would like to find out more about Barth Syndrome, please know that the Barth Syndrome Trust has a network of international members. These include doctors and scientists as well as families and volunteers from all around the world. If you are seeking information or support, you are now welcome to access these in […]
14/12/15 - Bereavement Booklet – Cardiac Risk in the Young
CHF member group Cardiac Risk in the Young (CRY) has launched a new bereavement booklet to help siblings and families get through the festive season. If you, your family or friends have been affected by a sudden young cardiac death, this booklet by CRY has been especially written to offer profound support and solace. Please […]
09/12/15 - Masterclass in exercise prescription for CHD
Are you a specialist nurse, physiotherapist or paediatric cardiologist? Would you like to attend a Masterclass in Exercise Prescription for CHD? Save the date! 28 – 29 January 2016 in Birmingham. This interactive and practical course will address the following areas: prescription in young adults and children risks of prescription exercise imaging practical application Course […]
08/12/15 - Barth Syndrome Research Call
Do you or a loved one have Barth Syndrome? Would you like to complete an on-line questionnaire about quality of life with Barth Syndrome? Dr John Lynn Jefferies from the Cincinnati Children’s Research Foundation is researching quality of life, anxiety and depression with Barth Syndrome. To see Dr Jefferies’ research request and to participate in […]
07/12/15 - All Party Parliamentary Group 8 December 2015
The next All Party Parliamentary Group Meeting will take place on: 8 December 2015 Max Appeal want to make sure that young people’s voices are heard! If you haven’t yet filled out the on-line questionnaire, you still have a chance to complete it today before tomorrow’s meeting. To access the on-line questionnaire and more information please […]
04/12/15 - ECHO Teen Club (ETC)
ECHO Teen Club (ETC) is an exciting group created for and by children and young people with a heart condition. If you are a person who has a heart condition and are treated at the Evelina Children’s Hospital (ECH) or at one of the 16 local District General Hospital Outreach Clinics, you may be interested […]
03/12/15 - Accessing NHS-funded treatment abroad
NHS England is updating guidance for patients living in England who wish to access NHS-funded healthcare abroad. NHS England would like to design and co-produce a new leaflet with patients/carers and organisations supporting patients/carers. Would you like to join this group and participate in a webinar on 7 December 2015? The webinar will take place from 12:30 – 14:00 […]
30/11/15 - Christmas Pizza!
Come see Santa and his little helpers create the perfect pizza! Pizza with Elves will be taking place at the Hilton, Manchester Airport on: Sunday 20 December 2015 from 12:30. Children will have the chance to make their own pizza with Santa! And everyone will enjoy a fantastic 3 course Sunday lunch. More information from […]
