News
04/03/19 - Launch of Paediatric and Neonatal Deceased Donation Strategy by NHS Blood and Transplant: Every gift of donation is precious
NHS Blood and Transplant today launches the Paediatric and Neonatal Deceased Donation Strategy. This ‘… aims to build a framework that embeds organ donation as a routine end of life care choice for every family facing the death of their child, in circumstances where donation may be possible.’ ‘… written in partnership with paediatric and […]
01/03/19 - Medicines
‘The Department of Health and Social Care (DHSC) has been working closely with the NHS, pharmaceutical companies, medical device supply companies and others in supply chains to make sure medicines and medical products continue to be available for the NHS if the UK leaves the EU without a deal.’ Further information: https://www.england.nhs.uk/eu-exit/medicines/
28/02/19 - Organ donation law: How Keira’s heart saved Max
‘Keira Ball was nine years old when she died in a car accident. But her donated organs saved the lives of four people, including Max Johnson, who received her heart. New legislation named Max and Keira’s Law is set to clear its final hurdle in Parliament. In England, under the new system, which comes into […]
25/02/19 - For teachers: Managing the needs of children with a heart condition at school
Most children with simple heart conditions will not need any special care at school. However, those with more complicated heart conditions may have extra needs that you should be aware of. Find out more from CHF’s information sheet for teachers. Further information: https://bit.ly/2N2prxu
18/02/19 - CHF’s Molly’s dollies: How they help children with their heart surgery scars
Mum Rachael shares a parent’s view about CHF’s Molly’s dolly: ‘Thank you so so much for my little girls dolly, we have named her Charlie! It’s such an amazing idea, I have sat and shown the scar to my three year old and explained that this is what her baby sister is going to have […]
13/02/19 - CHD awareness week
This week we are sharing on the website homepage this video created by Naomi Moazzeny for CHD awareness week featuring the children from Team 1C at Alder Hey Children’s Hospital. Thanks Naomi. Keep on sharing and raising awareness of CHD.
Feb 08th 2019 - Healthcare, medicine and Brexit
In the current climate of uncertainty around Brexit and the possibility of a no-deal exit, patients and their parents/ carers need to be aware of the following: Arrangements for reciprocal healthcare. People with hard to insure or potentially uninsurable health conditions may face challenges moving around the EU in the event of a no deal […]
Jan 24th 2019 - Mia’s story
Mia was born on 14th October 2010 six weeks early and weighing 5lb 6oz (a good weight for her prematurity). She was breathing at birth but stopped shortly afterwards and had to be resuscitated. She was then put on a ventilator but pulled the ventilator out and was breathing on her own and incubated. Ormskirk […]
Jan 21st 2019 - Mapping the atlas of the human heart: CHD and VSD
UK researchers are addressing the cardiac proteome in infant patients with congenital ventricular septal defect (VSD). The first atlas of the healthy human heart is known as the cardiac proteome. In a specific research initiative, UK researchers are focusing on a comparative study between right atria and right ventricles. Further information: https://bit.ly/2AFFqOu
Jan 14th 2019 - Guideline on infant, children and young people’s experience of healthcare
The National Institute for Health and Care Excellence (NICE) are recruiting lay committee members for the guideline on infant, children and young people’s experience of healthcare. If you are a care provider, family member or have experience of the voluntary and community sector, why not find out more before recruitment closes at 5pm on Friday […]
