News
29/03/19 - CHF’s drop-in session for MPs on 3 April to focus on supporting research into medication for heart children
The Children’s Heart Federation (CHF) is arranging a drop-in session for MPs today at Portcullis House. CHF’s initiative is an opportunity for your local MP to hear about how CHF is supporting research into medication for children and how we collaboratively have worked with scientists, doctors and patient groups to come up with a mini-tablet […]
18/03/19 - European CHD Youth Camp – Finland 2nd – 9th August 2019
CHF has been invited to send six young people to this international camp being hosted by the Finnish Association for Heart Children and Adults in Poukama, Finland. Open to young people aged 14 to 16 years priority in selection will be given to those who have not previously had the chance to participate in a […]
11/03/19 - Next generation of world leading CHD scientists
This week is British Science Week and Public Health England (PHE) are running a series of workshops and festivals for children and young people. Pupils will be offered a hands-on experience of a real public health laboratory and a series of interactive activities will help children and young people understand the variety of scientific careers […]
05/03/19 - World Transplant Games 2019
The Summer World Transplant Games 2019 will take place at Newcastle Gateshead on: 17 to 24 August ‘With doctors and facilities that have led pioneering work in transplantation for many years – the World Transplant Games Newcastle Gateshead 2019 will be a truly visible Games, shining a spotlight on the benefits of transplantation.’ Registration will […]
04/03/19 - Launch of Paediatric and Neonatal Deceased Donation Strategy by NHS Blood and Transplant: Every gift of donation is precious
NHS Blood and Transplant today launches the Paediatric and Neonatal Deceased Donation Strategy. This ‘… aims to build a framework that embeds organ donation as a routine end of life care choice for every family facing the death of their child, in circumstances where donation may be possible.’ ‘… written in partnership with paediatric and […]
01/03/19 - Medicines
‘The Department of Health and Social Care (DHSC) has been working closely with the NHS, pharmaceutical companies, medical device supply companies and others in supply chains to make sure medicines and medical products continue to be available for the NHS if the UK leaves the EU without a deal.’ Further information: https://www.england.nhs.uk/eu-exit/medicines/
28/02/19 - Organ donation law: How Keira’s heart saved Max
‘Keira Ball was nine years old when she died in a car accident. But her donated organs saved the lives of four people, including Max Johnson, who received her heart. New legislation named Max and Keira’s Law is set to clear its final hurdle in Parliament. In England, under the new system, which comes into […]
25/02/19 - For teachers: Managing the needs of children with a heart condition at school
Most children with simple heart conditions will not need any special care at school. However, those with more complicated heart conditions may have extra needs that you should be aware of. Find out more from CHF’s information sheet for teachers. Further information: https://bit.ly/2N2prxu
18/02/19 - CHF’s Molly’s dollies: How they help children with their heart surgery scars
Mum Rachael shares a parent’s view about CHF’s Molly’s dolly: ‘Thank you so so much for my little girls dolly, we have named her Charlie! It’s such an amazing idea, I have sat and shown the scar to my three year old and explained that this is what her baby sister is going to have […]
13/02/19 - CHD awareness week
This week we are sharing on the website homepage this video created by Naomi Moazzeny for CHD awareness week featuring the children from Team 1C at Alder Hey Children’s Hospital. Thanks Naomi. Keep on sharing and raising awareness of CHD.
