News
Jan 04th 2019 - New Year hospital appointment? Find out how to prepare yourself and your heart child
There can be a great deal of information provided during an appointment. By preparing ahead you will have a better chance of understanding the information you are given and will feel empowered with a list of informed questions. Find out how to prepare and plan by reading CHF’s ‘Talking to Doctors’ information sheet. Further information: […]
03/01/19 - Plans for life saving skills to be taught in schools
The Education Secretary has today underlined the importance of every child having the chance to learn life-saving skills such as CPR and how to get help in a medical emergency, under plans for health education to be taught in every school. Further information: https://www.gov.uk/government/news/damian-hinds-learning-life-saving-skills-in-school-is-crucial
Dec 21st 2018 - Feeding children with heart conditions
Are feeding times a challenge for you and your heart child and family? The Children’s Heart Federation (CHF) has an information sheet on feeding children with heart conditions. Download this resource and find practical advice on: The reasons that heart children have eating problems Tips for increasing calories Suggestions on getting help from other people […]
Dec 10th 2018 - CoaguChek Test Strips for Point of Care and Home Use: Risk of false high results (MDA/2018/033)
The government has issued important information regarding CoaguChek Test Strips for Point of Care and Home Use manufactured by Roche Diagnostics GmbH. There is a risk of false high results. Affected CoaguChek test strips may give false high results for INR values above 4.5 when compared to laboratory results and this may lead to incorrect […]
Nov 20th 2018 - Guidelines for children with heart conditions participating in parkrun
CHF has been liaising with parkrun UK to draft a set of guidelines for parents of children with heart conditions and parkrun organisers. The guidelines provide reassurance and information so that children with heart conditions can confidentally take part in the run and benefit from the exercise, fun and sense of achievement. ‘When I was […]
19/11/18 - Global Atrial Fibrillation Aware Week
Atrial Fibrillation (AF) is the most common arrhythmia (heart rhythm disorder). Over 1.5 million people have been diagnosed with AF in the UK alone. This Global AF Aware Week 19 – 25 November, find out more about AF and its detection and management. Further information: http://www.heartrhythmalliance.org/afa/uk/af-aware-week
25/10/18 - Children’s Heart Study summer newsletter
Download the project newsletter here. Over 5000 paediatric cardiac surgery procedures are performed in the UK each year and early survival has improved to over 98% however there is concern that parents are not adequately informed about possible outcomes. This research project being carried out at Great Ormond Street Hospital with input from CHF, looks […]
22/10/18 - Fathers’ experiences of having a child with a congenital heart defect
A new research study aims to capture fathers’ experiences when their child is born with a congenital heart defect (CHD). Are you a father with a child diagnosed with CHD? You are invited to participate in this study. The research study will focus on the fathering role and the interaction between fathers and healthcare professionals […]
19/10/18 - CHF and junior parkrun
CHF will be attending the junior parkrun at Welwyn Garden City on the 4th November. Please tell us if you’re coming via email: info@chfed.org.uk Please turn up at 08:30 am for a 09:00 am start. If your child wants to participate in the run they need to register and bring along their barcode. We would […]
