News
25/04/19 - The law around organ donation in England is changing
From spring 2020, all adults in England will be considered to have agreed to be an organ donor when they die unless they have recorded a decision not to donate or are in one of the excluded groups. This is commonly referred to as an ‘opt out’ system. You may also hear it referred to as ‘Max […]
04/04/19 - Support for CHF’s research into medication for infants and children campaign
MPs are showing their support for CHF’s new campaign into research for children’s medication by joining CHF’s Medicines for Children (M4K) Supporters Group and emailing Meds4kids@chfed.org.uk for more information. CHF are calling for medicines prescribed to children to be developed for children in age appropriate formulations. Let your local MP know about this new and […]
29/03/19 - CHF’s drop-in session for MPs on 3 April to focus on supporting research into medication for heart children
The Children’s Heart Federation (CHF) is arranging a drop-in session for MPs today at Portcullis House. CHF’s initiative is an opportunity for your local MP to hear about how CHF is supporting research into medication for children and how we collaboratively have worked with scientists, doctors and patient groups to come up with a mini-tablet […]
18/03/19 - European CHD Youth Camp – Finland 2nd – 9th August 2019
CHF has been invited to send six young people to this international camp being hosted by the Finnish Association for Heart Children and Adults in Poukama, Finland. Open to young people aged 14 to 16 years priority in selection will be given to those who have not previously had the chance to participate in a […]
11/03/19 - Next generation of world leading CHD scientists
This week is British Science Week and Public Health England (PHE) are running a series of workshops and festivals for children and young people. Pupils will be offered a hands-on experience of a real public health laboratory and a series of interactive activities will help children and young people understand the variety of scientific careers […]
05/03/19 - World Transplant Games 2019
The Summer World Transplant Games 2019 will take place at Newcastle Gateshead on: 17 to 24 August ‘With doctors and facilities that have led pioneering work in transplantation for many years – the World Transplant Games Newcastle Gateshead 2019 will be a truly visible Games, shining a spotlight on the benefits of transplantation.’ Registration will […]
04/03/19 - Launch of Paediatric and Neonatal Deceased Donation Strategy by NHS Blood and Transplant: Every gift of donation is precious
NHS Blood and Transplant today launches the Paediatric and Neonatal Deceased Donation Strategy. This ‘… aims to build a framework that embeds organ donation as a routine end of life care choice for every family facing the death of their child, in circumstances where donation may be possible.’ ‘… written in partnership with paediatric and […]
01/03/19 - Medicines
‘The Department of Health and Social Care (DHSC) has been working closely with the NHS, pharmaceutical companies, medical device supply companies and others in supply chains to make sure medicines and medical products continue to be available for the NHS if the UK leaves the EU without a deal.’ Further information: https://www.england.nhs.uk/eu-exit/medicines/
28/02/19 - Organ donation law: How Keira’s heart saved Max
‘Keira Ball was nine years old when she died in a car accident. But her donated organs saved the lives of four people, including Max Johnson, who received her heart. New legislation named Max and Keira’s Law is set to clear its final hurdle in Parliament. In England, under the new system, which comes into […]
25/02/19 - For teachers: Managing the needs of children with a heart condition at school
Most children with simple heart conditions will not need any special care at school. However, those with more complicated heart conditions may have extra needs that you should be aware of. Find out more from CHF’s information sheet for teachers. Further information: https://bit.ly/2N2prxu
