News
16/08/19 - Fundraising stars
On Sunday Julia Dancy is taking part in a “Big brutal swim” to raise funds for CHF. We are very grateful to her and all our fundraising stars who we rely on to do the work we do. Could you be one of our fundraising stars?
14/08/19 - Organ donation law to change
Today CHF attended a meeting of the NHS Blood and Transplant group. They are trying to make people aware of a law change that is taking place next year when an opt out system of organ donation will come into place. CHF is in favour of this change which will make more organs available for […]
08/08/19 - Krystal speaks out for pulse oximetry
Krystal Aveling and her daughter Poppy tell the tale of Poppy’s birth and her heart condition and the importance of pulse oximetry. This is your last chance to respond to the public consultation. https://legacyscreening.phe.org.uk/pulse-oximetry
26/07/19 - Tell your experience of hospital experiences to help improve services
Complete this survey to tell of your experiences of hospital appoinments. These reports will provide a valuable tool in enabling centres to better understand and respond to patients’ and parent/carers’ experience of care.
16/07/19 - Pulse oximetry survey
Support the campaign for pulse oximetry by completing this simple survey created by fellow heart charity Tiny Tickers.
10/07/19 - Comment for The Lancet on pulse oximetry screening
Professor Andrew Ewer and colleagues make the case for all babies in the UK to be screened for heart defects at birth. CHF continues to support this campaign. Please make your voice heard by responding to the public consultation.
01/07/19 - Molly Monday – how to order a Molly’s Dolly
Often people contact us confused as to how to pay for a Molly’s Dolly and ensure that it receives the correct scarring. There are two parts to the procedure. Order the doll from the shop, you can choose the doll you would like and can pay for it there. There is no way at this […]
Jun 26th 2019 - Pulse oximetry – your chance to voice your opinion
The UK’s National Screening Committee has been considering routine pulse oximetry screening for critical heart defects in newborn babies for a number of years. A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A […]
23/05/19 - Public consultation – have your say. Deadline 9 August 2019
A recent review undertaken by NHS England recommended to the UK National Screening Committee (UK NSC) against using pulse oximetry as an additional test in the newborn and infant physical exam (NIPE). A public consultation is now being held on whether the evidence presented supports the decision. This is your chance to tell your story […]
20/05/19 - CHF’s congenital heart disease (CHD) information service
CHF’s congenital heart disease (CHD) information service offers resources focusing on heart conditions as well as a wide variety of information sheets on all aspects of caring for a heart child. These include: planning holidays as a family hardship funds sourcing insurance companies specialising in children with a health condition. Further information: http://www.chfed.org.uk/how-we-help/information-service/
