News
05/09/16 - Organ Donation Week 2016
Donor – Recipient! CHF’s Molly’s dollies dedicate this Organ Donation Week 2016 to the most profound of connections – the gift of life given by organ donation. Further information: NHS Blood & Transplant Organ Donation & Transplantation Activity Report 2015/16 http://www.odt.nhs.uk/pdf/activity-report/activity_report_2015_16.pdf NHS History of organ donation interactive timeline: http://www.nhs.uk/Tools/Pages/transplant.aspx
01/09/16 - Extending the conversation on organ donation
CHF’s Molly’s dollies are dedicating these September days to extending the conversation on organ donation. And focusing on the most special Present: Organ Donation and the gift of Life. Further information: http://www.nhsbt.nhs.uk/what-we-do/organ-donation-transplantation/
30/08/16 - Survey on paediatric prescribing
Are you a health professional involved in paediatric prescribing? Would you like to participate in a Paediatric Prescribing Support Tools User Survey? The Royal College of Paediatrics & Child Health (RCPCH) is using this survey as a part of a wider research project, run by RCPCH, with the goal of identifying gaps and potential for further […]
22/08/16 - Signs & support for cardiomyopathy
Identifying the signs! CHF member group ‘Cardiomyopathy UK’ has produced a video to help nurses and doctors recognise the key symptoms of cardiomyopathy. Please view the video via the link below: http://www.cardiomyopathy.org/medical-professionals/recognising-symptoms-of-cardiomyopathy A further video identifying ways to support patients with cardiomyopathy can be accessed via the link below: http://www.cardiomyopathy.org/medical-professionals/supporting-patients-with-cardiomyopathy Please contact CHF via info@chfed.org.uk […]
15/08/16 - Respite & support for families with congenital heart disease (CHD) or feeding issues
Would you like to have time for a little bit of ‘we’ time – just you and your loved ones? CHF member group Lagan’s Foundation offers home respite and support services to families of young children with heart defects or feeding issues at home or in hospital. You’re welcome to express an interest and receive […]
08/08/16 - A multi-disciplinary approach to 3D printing in congenital heart disease (CHD) surgery
Research cited in the ‘World Journal for Pediatric and Congenital Heart Surgery’ addresses three dimensional (3D) printing and its applications in surgery for congenital heart disease. This research notes that a multi-disciplinary approach is important for high quality 3D printing. Further information: http://pch.sagepub.com/content/7/3/351.short
03/08/16 - Cardiomyopathy information for children & adults
Have you or a loved one been diagnosed with cardiomyopathy? Please know CHF member group ‘Cardiomyopathy UK’ has a booklet called ‘Living with Cardiomyopathy’ which can be ordered for free or downloaded in digital format. There is also a booklet called ‘Hearty‘ that is aimed at children of 8 years and under, to explain what […]
02/08/16 - NIPE SMART IT update
Public Health England (PHE) announces an updated version of the Newborn and Infant Physical Examination (NIPE) Screening Management and Reporting Tool (SMART) IT system! The update is available to users from 2 August 2016. Further information: https://phescreening.blog.gov.uk/2016/08/01/nipe-smart-new-release-imminent/
30/07/16 - Sibling support and children with congenital heart disease (CHD)
Children with congenital heart disease (CHD) and their siblings inspire us with their resilience each day! Would you like to find out how to better read the signs and help a sibling to a heart child? Further information: https://www.sibs.org.uk/supporting-young-siblings/professionals/supporting-siblings-in-schools/
18/07/16 - Congenital heart disease (CHD) report
The link below is to the report of the national panel that reviewed provider self-assessments against the congenital heart disease standards. Further information: https://www.england.nhs.uk/commissioning/spec-services/npc-crg/chd/
