News

26 Jul 2018

23/07/18 - CHF’s informational resource for children with SVT

A very fast heart rate is called tachycardia. In children the most common kind of tachycardia is supraventricular tachycardia – SVT for short. Supraventricular Tachycardia (SVT) in children can be present at (or even before) birth. Further information from CHF’s information sheet: http://www.chfed.org.uk/how-we-help/information-service/heart-conditions/supraventricular-tachycardia-svt/

20 Jul 2018

16/07/18 - Fact sheet on Attendance

Children with medical conditions should not be penalised if they are unable to come to school because of their medical condition. If you are facing problems, this fact sheet explains: what support is in place and what your rights are. Further information: https://bit.ly/2zJCnqw

13 Jul 2018

13/07/18 - Kawasaki Disease: The most common acquired heart disease in infants and toddlers

Researchers from the UK and Germany have published a study addressing Kawasaki Disease (KD). KD is the most common acquired heart disease that mostly affects infants and toddlers. ‘Delayed diagnosis and treatment results in coronary artery aneurysms in up to 25% of all affected individuals.’ Link to study: https://bit.ly/2LdVHka Further information from CHF’s Kawasaki Disease […]

13 Jul 2018

09/07/18 - Organ donation & transplantation

NHS Blood and Transplant’s Organ Donation and Transplantation Activity Report for 2017/2018 includes the following key figures: The consent rate for deceased donation has reached a record high, with 65.5% of families agreeing to support the donation of a relative’s organs. The number of deceased donors reached a record high of 1574 an 11% increase […]

06 Jul 2018

06/07/18 - Young adults with congenital heart disease and driving

Did you know that you must tell the Driver and Vehicle Licensing Agency (DVLA) if you have congenital heart disease and have symptoms that affect safe driving? Further information: https://www.gov.uk/congenital-heart-disease-and-driving

05 Jul 2018

02/07/18 - Let’s hear it for CHF’s fundraising stars!

Your fantastic efforts and support of CHF’s work is helping CHF provide more congenital heart disease (CHD) resources for heart children and their families as well as raising much needed congenital heart disease awareness to new communities. New month, new week, same outstanding motivation. Further information: http://www.chfed.org.uk/category/fundraising-stars/

29 Jun 2018

25/06/18 - International research and Fontan patients

An international research study asks: Can endurance training improve physical capacity and quality of life in young Fontan patients? Further information: https://bit.ly/2ynrz0F

22 Jun 2018

18/06/18 - Help develop the NICE guideline on atrial fibrillation

The National Institute for Health and Care Excellence (NICE) are inviting lay members to join their atrial fibrillation guideline committee. This is an 18 month commitment and will ensure your views of atrial fibrillation are fully taken on board through experiences gained either as a patient or as an advocate for a loved one diagnosed […]

15 Jun 2018

11/06/18 - Your story.  Your voice.

CHF has received a media request for health stories ahead of the 70th anniversary of the National Health Service. This project aims to capture people’s memories of the NHS via a voicemail platform with a selection of audio recordings being published with permission via print and online. You’re invited to call up and record experiences […]

01 Jun 2018

31/05/18 - Help with travel costs to hospital

Are you aware that you could receive help with the cost of travel to hospital if you have a low income? The NHS Low Income Scheme could help with the cost of travelling to receive NHS treatment. Further information: https://www.nhsbsa.nhs.uk/nhs-low-income-scheme

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