01/02/11 - Bournemouth Daily Echo
“Television star Debra Stephenson made an instant impression on primary school pupils when she helped them create cuddly Valentine’s Day gifts for children suffering from congenital heart defects. The Coronation Street and Bad Girls actress took time off to visit the Build- A-Bear Workshop in Commercial Road, Bournemouth, where she met foundation year pupils from […]
01/02/11 - Safe and Sustainable Review of Childrens Congenital Cardiac Services in England Pre Consultation Business Case
This document sets out recommendations for a superior congenital heart service for the children of England and Wales – a service that is safe and sustainable. S&S Business Case
01/12/10 - Children’s Cardiac Services News Issue 4
Fourth issue of HeartNews. This newsletter is packed with the latest information about the NHS Safe and Sustainable review into children’s congenital heart services. Surgery_Services_News_04_Winter_2010
15/10/10 - Children’s Heart Federation comment on paediatric cardiac surgery at the John Radcliffe Hospital
For immediate release – Friday 15 October 2010 Children’s Heart Federation (CHF) accepts that in order to achieve the highest possible clinical standards in children’s heart surgery, there needs to be a reorganisation of the national paediatric heart care service that results in fewer, larger surgical units, each of which would have a team of […]
04/10/10 - Consultation response on ‘Liberating the NHS’ White Paper
Response to: Equity and excellence: Liberating the NHS Vision We welcome all the elements of the vision of an NHS laid out at 1.10, except for ‘puts clinicians in the driving seat’. We contest the polarisation ‘clinicians good, managers bad’ advanced by this strategy. We support a competency-based approach to the National Health Service, […]
29/07/10 - Take the ‘Make a Difference Mile’ challenge to help a heart child this weekend
29th June 2010 Children’s Heart Federation (CHF) is urging local people to help veteran runner,Paul Willgoss, make a final push to the finishing line of his twelve-month long-distance campaign to raise money for children with a heart condition by taking the ‘Make a Difference Mile’ challenge at the East Midlands Designer Outlet on Saturday 3 […]
29/07/10 - Don’t scapegoat Oxford Heart Unit, urges charity
Children’s Heart Federation welcomes the continued suspension of the paediatric cardiac surgical service at the John Radcliffe Hospital until the outcome of the current Safe and Sustainable Review is known, and urges clinicians and health service planners to apply learning from Oxford across the national heart surgery service and to implement the agreed service standards, […]
12/07/10 - White paper puts heart children at risk in scramble to save costs, warns charity
Children’s Heart Federation, the leading national charity supporting children and young people with a heart defect, warns that patients with the rarest conditions could suffer in the move to GP commissioning announced by today’s health White Paper. In all their years of general practice, family doctors may only see cases of a rare condition, including […]
Jun 18th 2010 - Foetal Heart Development Study
The UK centre for the study of the genetics of multifactorial diseases is currently engaged in research into the genetics behind why some babies are born with heart defects, with the ultimate aim of preventing them altogether. In most cases, congenital heart disease develops because something has gone wrong during the crucial stage in foetal […]
Jun 13rd 2010 - Daisy’s Story
We lost our little girl when she was just over a year old. When we discovered she had a heart problem, we thought it was the end of the world. Through our support group we met two other families whose children had been born with Truncus Arteriosus and are now fine. So when Daisy had […]
