While Health Secretary, Andrew Lansley, agrees with GPs who say,
“My job is to look after the patient in front of me,” Anne Keatley-Clarke, Children’s Heart Federation’s Chief Executive, sees serious limitations in this approach for patients with a rare condition.
“We know parents of heart children often bypass the GP because their level of understanding of the condition is inadequate. This group of patients will be seriously let down if money and good systems to purchase their care are not firmly in place. Out of sight must not be out of mind.”
“We also hear of GPs refusing to treat heart children, where parents understand this is on cost grounds. Let’s remember that many GPs are businessmen running as independent contractors and may well be looking at how they can maximise profits. We must not sacrifice heart children’s care in a scramble to save management costs.”
Notes for editors: