21 Dec 2020

21/12/20 - Impact of COVID-19 on patients with congenital heart disease

A summary of international papers researching the impact of COVID-19 on patients with congenital heart disease. Download here. If your child is unfortunate enough to text positive for COVID-19 please inform their cardiac team so their data can be added to the UK study.  

Aug 13rd 2020 - Can you help us improve the quality of services for congenital heart disease?

The Children’s Heart Federation are involved in a new study called CHAMPION to try to improve how the quality of services for congenital heart disease (CHD) is measured and reported in England. We want to hear your views on what makes services good quality, which includes understanding how COVID-19 has affected your experience of health […]

Feb 20th 2020 - Rico’s story

My name is Kirsty, I am a mum to a handsome little boy who was born with congenital heart block. In my 28th week of pregnancy I was told that my baby had a serious heart condition and would possibly not survive; he would need surgery the minute he was born. When Rico was born, […]