Dec 30th 2024 - ‘Hoping for a Christmas miracle’: Children waiting months for life-saving procedures as all NHS beds full
Featured in LBC latest article, the CHF chief executive spoke in relation to critically ill children waiting up to eight weeks for life-saving procedures because there’s no space in the NHS. The chief executive of the Children’s Heart Federation, Rajwant Kaur Singh, told LBC situations like Fatima’s are “devastating”. She said she didn’t believe […]
Nov 26th 2024 - Mental Health Support for Children with CHD and their Families
You may remember, as part of our acknowledgement of mental health week in May 2024 we conducted a short survey to find out more about the mental health support available for children with heart conditions, their families and carers across the UK. Here we present back our findings, which we hope will inform our future […]
Nov 22nd 2024 - Nicholas’ Story
told by his mother Eliamara Nicholas its a brave and a very bright clever boy, he brings joys and happiness to as every day and give us reason to believed in good reason to live . He also my second son, he has a sister called Isadora, 4 yrs old than Nicholas. Which’s loves him. […]
Nov 12nd 2024 - Roadmap for the Healthiest Generation of Children Ever
We are proud to be part of the The Children and Young People’s Health Policy Influencing Group (HPIG) a strong, independent voice advocating for improvements to the health of babies, children and young people. Despite the government’s manifesto commitments to ‘the healthiest generation ever’ and ‘prevention first’ approach to health, a coalition of charities and […]
Dec 19th 2024 - Coffee & Questions
CHF Coffee & Questions are a series of online events, on a variety of subjects relevant to families with children with heart conditions Click the topic to watch the recording. Previous Events Mental Health – Mindset Techniques and Tools Mental wellbeing expert and coach, Anji delivers strategies-based workshop to help support carers with their […]
Aug 15th 2024 - Children at the Table Campaign
Children at the Table Campaign, a new study by the University of Cambridge and the National Children’s Bureau (NCB) shows serious issues when children and young people with social work involvement for current concerns or experiencing poverty try to access mental health services (CAMHS). The analysis of over 71,000 health records shows that children and […]
May 15th 2024 - CHF Whitemoor Lakes Activity Day
Join the Children’s Heart Federation for an outdoor activity day at Whitemoor Lakes, Staffordshire. 6th July 2024 There will be a range of indoor and outdoor activities during the course of the day and lunch and refreshments will be provided. Activities planned includes archery, fencing, arts & crafts, gladiators, giant SUP boarding, zipwires, Zorb football […]
Feb 01st 2024 - Heart Month 2024
Each year, National Heart Month is observed in February. Read today’s story here Share your story During this time, we are sharing ‘Your Stories’ every day throughout heart month. Stories really matter; not only do they make a real difference to other people in a similar situation, they offer inspiration and comfort. If you […]
Jan 15th 2024 - Steering Groups
Share your experience to shape the future for children with heart conditions We want to hear from: • Young people with heart conditions (you should be ages 10-25 and at any stage of your heart journey). • Professionals in the cardiac sectors (you could be a nurse, radiographer, outreach professional, care worker, play specialist, […]
Feb 29th 2024 - Daisy’s story
told by her mum Emma and dad Ronnie This is our daughter Daisy. She is the light of our world and we love her dearly. Daisy was born via a c-section on 19th June 2023. We had no idea she had heart issues. She was very quiet after she was born, and didn’t take […]
