Mar 25th 2025 - Legoland Activity Day

  Join us for a fun day out for children with heart conditions, their families and carers at Legoland Windsor Resort on Saturday 21st June 2025. With over 55 rides and attractions, there’s something for all ages and abilities. Please complete the booking form for each group member who is attending. Child applies to a […]

Feb 03rd 2025 - Turning Adversity into Purpose

Well Financial and CHF team up When Chris Harland, a director at Well Financial, experienced a heart attack last year, it was the last thing he expected. Chris was 48, in good health, active and ran a marathon 18 months before! Not the kind of person you’d never imagine facing such a life-threatening event. Yet, […]

Dec 30th 2024 - ‘Hoping for a Christmas miracle’: Children waiting months for life-saving procedures as all NHS beds full

Featured in LBC latest article, the CHF chief executive spoke in relation to critically ill children waiting up to eight weeks for life-saving procedures because there’s no space in the NHS.   The chief executive of the Children’s Heart Federation, Rajwant Kaur Singh, told LBC situations like Fatima’s are “devastating”. She said she didn’t believe […]

Nov 26th 2024 - Mental Health Support for Children with CHD and their Families

You may remember, as part of our acknowledgement of mental health week in May 2024 we conducted a short survey to find out more about the mental health support available for children with heart conditions, their families and carers across the UK. Here we present back our findings, which we hope will inform our future […]

Nov 22nd 2024 - Nicholas’ Story

told by his mother Eliamara  Nicholas its a brave and a very bright clever boy, he brings joys and happiness to as every day and give us reason to believed in good reason to live . He also my second son, he has a sister called Isadora, 4 yrs old than Nicholas. Which’s loves him. […]

Nov 12nd 2024 - Roadmap for the Healthiest Generation of Children Ever

We are proud to be part of the The Children and Young People’s Health Policy Influencing Group (HPIG) a strong, independent voice advocating for improvements to the health of babies, children and young people. Despite the government’s manifesto commitments to ‘the healthiest generation ever’ and ‘prevention first’ approach to health, a coalition of charities and […]

Dec 19th 2024 - Coffee & Questions

CHF Coffee & Questions are a series of online events, on a variety of subjects relevant to families with children with heart conditions Click the topic to watch the recording.   Previous Events Mental Health – Mindset Techniques and Tools Mental wellbeing expert and coach, Anji delivers strategies-based workshop to help support carers with their […]

Aug 15th 2024 - Children at the Table Campaign

Children at the Table Campaign, a new study by the University of Cambridge and the National Children’s Bureau (NCB) shows serious issues when children and young people with social work involvement for current concerns or experiencing poverty try to access mental health services (CAMHS). The analysis of over 71,000 health records shows that children and […]

May 15th 2024 - CHF Whitemoor Lakes Activity Day

Join the Children’s Heart Federation for an outdoor activity day at Whitemoor Lakes, Staffordshire. 6th July 2024 There will be a range of indoor and outdoor activities during the course of the day and lunch and refreshments will be provided. Activities planned includes archery, fencing, arts & crafts, gladiators, giant SUP boarding, zipwires, Zorb football […]

Feb 01st 2024 - Heart Month 2024

Each year, National Heart Month is observed in February. Read today’s story here   Share your story During this time, we are sharing ‘Your Stories’ every day throughout heart month. Stories really matter; not only do they make a real difference to other people in a similar situation, they offer inspiration and comfort. If you […]