Nov 06th 2023 - CHF gives recognition to rare conditions
As a member of the Newborn Screening Collaborative CHF is pleased to announce the launch of a new short film which aims to create awareness and encourage conversation, action and change in relation to the screening of newborns in the UK. Through our work with the families of children with heart conditions, the importance of […]
Feb 09th 2024 - Cara’s story
told by mum Vicky Cara was born with Pulmonary Atresia in Sept 2018 and at her 20 week scan we were told there was something wrong with her heart because the pulmonary valve hadn’t formed properly. We were told Cara was eligible for fetal balloon valvuloplasty at 28 weeks pregnant. This involved a needle being […]
Jul 11st 2023 - Activity days in the North East and North Cumbria
Are you a family living in the North East and North Cumbria? Do you know a child or young person living with congenital heart disease? Join CHF for some interactive day of fun and learning! Scan the QR code or click on the image to find out more
Feb 28th 2023 - What we go through every day
Teenager signs a powerful message to other young people with heart conditions As heart month draws to a close a teenager from Crewe has sent out a powerful message in British Sign Language (BSL) to other young people with heart conditions. Robert Allen gives an expressive and emotional performance signing the words of Fight Song […]
Feb 08th 2023 - CHF are recruiting for three new steering groups
Help CHF and children with heart conditions nationwide by sharing your experience in one of our steering groups. CHF are aiming to recruit for three new steering groups that will advise on issues relating to children with congenital or acquired heart conditions through lived and professional experience. We want to hear from: Young people with […]
Feb 02nd 2023 - On His Majesty’s Congenital Heart Service
As part of CHF’s mission to ensure that those affected by congenital heart conditions, and childhood acquired heart conditions, are recognised, supported and have the same opportunities as everyone else, CHF’s Chair and Vice-Chair of Trustees have engaged with the British Cardiovascular Society for many years. Working with other patients, and ably supported by others […]
Jun 22nd 2022 - NCHDA summary report
This important publication is of interest to anyone concerned about children with congenital heart disease. The National Congenital Heart Disease Audit collects and analyses data from all congenital cardiac centres that undertook surgery, interventional procedures (including electrophysiology) and antenatal detection in the UK and Republic of Ireland between 2018 to 2021. The complete summary report […]
May 25th 2022 - Dominic’s story – told by Dominic
Dominic Davies aged 21 tells the story of his heart condition, his heart transplant and why he supports the law change relating to organ donation Hearing that there’s something very wrong with your baby’s heart must be terrifying. That’s what my mum was told at her routine scan when she was 20 weeks pregnant with […]
May 19th 2022 - Lilly’s story
Lilly’s story told by her mother Kirsty Lilly’s heart was stable when she was born so was born in September 2020 and she was discharged by the Friday of that same week. Lilly has a very rare heart condition called dextrocardia where the heart is on the right hand side of the chest rather than […]
