News
04/10/16 - Children’s & parents’ informed & willing consent to heart surgery
CHF are supporting research by Prof Priscilla Alderson and Dr Katy Sutcliffe from University College London (UCL), focusing on children’s and parents’ informed and willing consent to heart surgery. We are planning research with families and healthcare staff about how young patients aged 6-15 years are informed and involved in decisions about their heart surgery. […]
26/09/16 - Communicating about cardiomyopathy
Every question you may have about cardiomyopathy is really important to us. Please know CHF member group Cardiomyopathy UK has cardiomyopathy support nurses available to answer your questions and concerns. You are welcome to contact the cardiomyopathy nurses on-line or via phone and email. Communication is key and whether you or a loved one have […]
24/09/16 - A week to remember
CHF member group Cardiac Risk in the Young (CRY)’s Raising Awareness Week 2016 takes place: 19 – 27 November 2016 CRY’s core aim is to reduce the incidence of young sudden cardiac death through: raising awareness supporting the bereaved providing expert cardiac pathology screening for young people to identify cardiac conditions research to inform policy & […]
23/09/16 - High 5 for CHF’s Fiver Friday!
CHF’s Molly’s dollies are using their highlighters on every number 5 they come across today to invite us all to send CHF a fiver on Fiver Friday! And every five pounds will make a fantastic difference to brightening up a heart child’s congenital heart journey and help fund more Molly’s dollies for more CHF children […]
19/09/16 - CHD sports inspiration Alfie Hewett
CHF send many congratulations to Alfie Hewett — 100% inspiring wheelchair tennis player born with congenital heart disease. Alfie’s Tetralogy of Fallot has provided no limits to Alfie’s representing Great Britain at the 2016 Rio Paralympics and for winning silver medals in both the singles and doubles! A true CHF Champion twice over! Further information: […]
09/09/16 - Health conditions in schools
Does your child’s school require guidance and support in looking after children with health conditions? The Children’s Heart Federation (CHF) is part of the Health Conditions in Schools Alliance. This is a group of over 30 organisations working collaboratively to ensure children with health conditions receive the care that they require in schools. The alliance […]
05/09/16 - Organ Donation Week 2016
Donor – Recipient! CHF’s Molly’s dollies dedicate this Organ Donation Week 2016 to the most profound of connections – the gift of life given by organ donation. Further information: NHS Blood & Transplant Organ Donation & Transplantation Activity Report 2015/16 http://www.odt.nhs.uk/pdf/activity-report/activity_report_2015_16.pdf NHS History of organ donation interactive timeline: http://www.nhs.uk/Tools/Pages/transplant.aspx
01/09/16 - Extending the conversation on organ donation
CHF’s Molly’s dollies are dedicating these September days to extending the conversation on organ donation. And focusing on the most special Present: Organ Donation and the gift of Life. Further information: http://www.nhsbt.nhs.uk/what-we-do/organ-donation-transplantation/
30/08/16 - Survey on paediatric prescribing
Are you a health professional involved in paediatric prescribing? Would you like to participate in a Paediatric Prescribing Support Tools User Survey? The Royal College of Paediatrics & Child Health (RCPCH) is using this survey as a part of a wider research project, run by RCPCH, with the goal of identifying gaps and potential for further […]
22/08/16 - Signs & support for cardiomyopathy
Identifying the signs! CHF member group ‘Cardiomyopathy UK’ has produced a video to help nurses and doctors recognise the key symptoms of cardiomyopathy. Please view the video via the link below: http://www.cardiomyopathy.org/medical-professionals/recognising-symptoms-of-cardiomyopathy A further video identifying ways to support patients with cardiomyopathy can be accessed via the link below: http://www.cardiomyopathy.org/medical-professionals/supporting-patients-with-cardiomyopathy Please contact CHF via info@chfed.org.uk […]
