News
18/12/17 - CHF’s congenital heart disease (CHD) support networks
A challenge shared is a challenge halved. CHF offers congenital heart disease (CHD) awareness and support together with our partner groups. In addition to accessing CHF’s CHD information sheets, parents can join our social media platforms and Facebook groups to share insights and advice about caring for a heart child and their siblings. Find out […]
12/12/17 - Launch of organ donation consultation in England
The Government has launched a consultation into organ donation in England which will continue until 06 March 2018. The aim of the consultation is to establish what more could be done in England to ensure that public support for organ donation is reflected both within the legal system and in the NHS. And that more […]
Dec 13rd 2017 - Order a Molly’s Dolly in time for Christmas
We have changed our Molly’s Dollies application form so you can see a picture of the dolls available. It can be downloaded here https://www.chfed.org.uk/…/07/mollys-dolly-application-form.… Email as an attachment to info@chfed.org.uk Remember you do not need a signature of a healthcare professional if you purchase the doll yourself. The doll can be bought through the CHF online shop […]
11/12/17 - Patient & Family Focused CHD Care
A research study is addressing patterns of transition experience for parents going home from hospital with their infant after first stage surgery for complex congenital heart disease. The study notes: ‘Parental support is essential; parents need to be engaged in discharge planning process and given the opportunity to express their needs to ensure that discharge […]
02/12/17 - The Children’s Heart Federation (CHF) welcomes NHS England’s decision to sharpen standards for Congenital Heart Disease (CHD) services
At their meeting on Thursday 30 November 2017 the Board of NHS England discussed the outcome of the public consultation on proposed changes to paediatric cardiac services and decided the following: The Liverpool Heart and Chest Hospital NHS Foundation Trust will provide level 1 adult CHD services in the North West; The University Hospitals of […]
30/11/17 - NHS England Board meeting outlines the future of congenital heart services
This meeting took place this morning, NHS England has issued a statement summarising the conclusions, read it here.
28/11/17 - CHF’s Letter to Mr Simon Stevens CEO NHS England
Mr Simon Stevens CEO NHS (England) Skipton House London SE1 6LH 28th November 2017 Dear Mr Stevens We hope that the decision to be made by the NHS (England) Board on 30th November regarding the Congenital Heart Service will end the uncertainty that currently exists and will enable all concerned with the care […]
Nov 14th 2017 - Watch our video panel
In case you are wondering why there is a snow boarding video on the homepage. The snow boarder is Shaun White who was born with Tetralogy of Fallots. If you have photographs or videos showing what a child with a heart condition can achieve and are willing to share them, please email the link or […]
13/11/17 - CHF partner group’s #MyHeartStory campaign
Find out more about CHF partner group Cardiomyopathy UK’s #MyHeartStory campaign. Cardiomyopathy is a disease of the heart muscle that affects more than 160,000 in the UK. Signs and symptoms of cardiomyopathy may include: Breathlessness with exertion or even at rest. Swelling of the legs, ankles and feet. Bloating of the abdomen due to fluid build-up. […]
08/11/17 - CHF & CHD awareness at BCCA 2017
CHF are taking the congenital heart disease (CHD) awareness message to the British Congenital Cardiac Association (BCCA) AGM on 09 and 10 November 2017. Paediatricians with Expertise in Cardiology Special Interest Group (PECSIG) and the Congenital Cardiac Nurses (CCNA) meetings will be running in parallel during these days. CHF look forward to sharing new CHD […]
