News
11/12/12 - This is Surrey – Santa Cruise skate challenge planned by North Holmwood woman
Each of the skaters will don festive costumes on their longboards –an elongated, faster version of a skateboard – to help raise awareness of those with congenital heart defects. Ms Brown, of Hartswood, North Holmwood, said she and friend Sam Bonathan, of Farnborough, had been called “crazy” for taking part in the event, which will […]
05/12/12 - Simon Wright MP – Norwich MP helping to mend Broken Hearts
Simon Wright, Member of Parliament for Norwich South has attended a summit in Parliament with leading heart charities to discuss how care can be improved for the hundreds of thousands of people in the UK who are living with heart conditions they were born with. Congenital heart disease affects 1 in every 133 children. It […]
03/12/12 - The Yorkshire Times – Leeds Heart Unit – Legal Challenge Goes Ahead
The long- awaited hearing into the closure of Leeds General Infirmary’s children’s heart [surgery] unit will go ahead as planned. Attempts to delay a legal challenge to the closure of the children’s heart [surgery] unit at Leeds General Infirmary have now failed after a judge dismissed a bid to delay the hearing. Campaign group Save Our […]
22/11/12 - Get Surrey – Longboarding Santas raising cash for heart charity
A WOKING father will be leading a group of 15 longboarders dressed as Santa Claus on a 26-mile journey to raise money for a charity that helped his daughter. Dean Lake, whose daughter Olivia was born with a heart condition, established the Longboarding for Little Hearts group to help children with heart problems. The group’s […]
22/11/12 - Ascot Windsor & Eton Express – Dad getting skates on for 26-mile trip after daughter’s heart surgery
Proud dad Dean Lake is getting his skates on to raise awareness of a heart condition that left his baby daughter fighting for her life. Dean’s daughter Olivia, three, needed open heart surgery at the age of seven months. Now father-of-three Dean, 30, who lives near Woking, will be leading a group of more than […]
16/11/12 - National Health Executive – Campaigners accused over heart surgery changes
The Children’s Heart Foundation (CHF) has criticised a potential delay to the judicial review of heart unit changes, following rumours that the Save Our Surgery campaign group is planning to “deliberately” halt its challenge to further delay planned changes to children’s heart services. The Save Our Surgery campaign was set up to oppose the unit […]
07/11/12 - Andrew Gwynne MP – SUPPORTING GREATER CHOICE for patients to self-monitor
Andrew Gwynne is lending his support to a new campaign aimed at giving long-term warfarin patients greater choice in the management of their condition. The AntiCoagulation Self Monitoring Alliance (ACSMA) officially launched its campaign at a parliamentary reception in Westminster. There are more than 1.2 million people in the UK on warfarin, but fewer than […]
02/11/12 - Wales Online – Hospital ordered to cut operations following death of Cardiff tot Luke Jenkins
A hospital at the centre of a row about the streamlining of children’s heart surgery units has been forced to restrict the number of children’s cardiac operations. The move comes after the health watchdog found that Bristol Royal Hospital for Children has inadequate staff levels to care for patients on a cardiac ward. Earlier this […]
31/10/12 - Children’s Heart Federation responds to CQC investigation into Bristol Children’s Hospital care
After a number of concerns over cases of poor care at Bristol Children’s Hospital and an unannounced inspection of the hospital by the Care Quality Commission (CQC) a number of issues have been raised about the level of staffing and training at the unit. The Children’s Heart Federation has raised its serious concerns about these […]
30/10/12 - Children’s Heart Federation joins campaign for access to INR machines
CHF with a number of other national charities has formed The Anti-Coagulation Self-Monitoring Alliance (ACSMA). The Alliance is campaigning to see greater access, via prescription, to INR self-monitoring technology for children on warfarin. The alliance is also seeking to raise awareness of the benefits of self-monitoring and aims to ensure that families are better equipped […]
