News
15/08/13 - The AIMS Study – The Aortic Irbesartan Marfan Study
The Royal Brompton NHS Foundation Trust together with 30 hospitals across England, Scotland, Wales & Northern Ireland are taking part in an important clinical trial investigating Marfan Syndrome. Marfan syndrome is a inherited genetic condition affecting approximately 18,000 people in the UK which can cause life threatening cardiovascular complications. The main purpose of this study […]
30/07/13 - TOP BRITISH ATHLETE, LESLEY OWUSU TO JOIN BRIGHTHEARTS WEEKENDER
British athlete, Lesley Owusu will be inspiring young people with heart conditions at the Brighthearts Forum ‘Wonderful Weekender’ on the 12th and 13th October, 2013. The former 400 metre British champion has been confirmed as a speaker at an event in London, bringing together young people from all around the UK. The free weekend, run […]
29/07/13 - The People’s Operator turn Likes into donations for CHF
One little Like to make a big difference Over the next 4 weeks The People’s Operator are turning Facebook likes into £1 donations for the Children’s Heart Federation. With your help, we can reach our target of 1000 and also spread the word about our great partnership while we’re at it. All you need to […]
22/07/13 - Competition for free Great North Run Place
This week we are giving away one free place for the most popular half marathon road running event in the world on 15th Sept 2013 (registration fee usually £49). Tackle the 13.1 mile stretch of tarmac between Newcastle and Gateshead in and raise vital funds for the Children’s Heart Federation. Email your name, email address and […]
18/07/13 - Direct 365 – Defibrillators For Schools
How often do you check your first aid provisions, or know of the first aid provisions in your childs school? Do they simply have a little green box, locked in a cupboard, aside one of a few qualified first aiders? Is it kept in a room that hasn’t been opened since the new guy mistook […]
15/07/13 - CharityGiving website suspended – charity regulator acts to protect public donations
CHF are aware of the problems regarding www.charitygiving.co.uk and would like to reassure our fundraisers that we have not used this company. If you would like to set up a fundraising page we would reccomend using www.virginmoneygiving.com or www.justgiving.com For more detail on this issue please visit this entry on the Charity Commission website.
12/07/13 - BBC Breakfast – Pulse Oximetry Feature
Aired 11/07/2013. Report by Ben Moore of the BBC. Interview with Julie Wooton, Chair of CHF.
18/06/13 - Wonderful Weekender
Aged 13-21? Got a heart condition? You are not alone.
Meet others from around the UK, get empowered with managing your own health and getting to know your own heart.
When? Saturday 12th and Sunday 13th October
Where? London
Join us for a weekend of practical information, support, friendships and fun.
Hands-on workshops and information
Bowling, shopping at Westfield and a hotel stay!
14/06/13 - Halifax Courier – Heart services process re-evaluated
NHS officials have been ordered to re-evaluate the streamlining of children’s heart surgery services after the decision to close three units, including in Leeds, was deemed to be flawed. Plans to shut the units in Leeds, Leicester and west London were put on hold by Health Secretary Jeremy Hunt after an independent review suggested that the consultation […]
